Long COVID survival guide, out Nov 8 2022

[Cheshire]

The LC survival guide is a a peer-to-peer advice book, edited by Fiona Lowenstein.

The first patient-to-patient guide for people living with Long COVID—with expert advice on getting diagnosed, dealing with symptoms, accessing resources and accommodations, and more.

For people living with Long COVID, navigating the uncharted territory of this new chronic illness can be challenging. With over two hundred unique symptoms, and with doctors continuing to work toward a cure, people experiencing Long COVID are often left with more questions than answers.

A support group in book form, The Long COVID Survival Guide is here to help. Twenty contributors—from award-winning journalists, neuroscientists, and patient-researchers to corporate strategists, activists, and artists—share their stories and insight on topics including:

• getting diagnosed
• finding a caregiver
• confronting medical racism and gaslighting
• navigating employment issues
• dealing with fatigue and brain fog
• caring for your mental health, and more.

This vital resource provides the answers and reassurance you need, to take care of yourself and prepare for what comes next.

Contributors: Karyn Bishof, JD Davids, Pato Hebert, Heather Hogan, Monique Jackson, Naina Khanna, Lisa McCorkell, Karla Monterroso, Dona Kim Murphey, Padma Priya, David Putrino, Yochai Re’em, Rachel Robles, Alison Sbrana, Chimére L. Smith, Letícia Soares, Morgan Stephens, and Terri L. Wilder

https://theexperimentpublishing.com/catalogs/fall-2022/long-covid-survival-guide/

Events will take place for its release (one of which will be hosted by @dave30th )

 

[John Mac]

David Tuller has spoken with the author.

Trial By Error: The Long COVID Survival Guide and the Role of Patients in Research

22 November 2022 by David Tuller 1 Comment

By David Tuller, DrPH

“The Long COVID Survival Guide: How to Take Care of Yourself and What Comes Next—Stories and Advice from Twenty Long-Haulers and Experts” is pretty much what it sounds like. The anthology was published earlier this month, and each chapter is written by one or more contributors. The topics covered address long Covid through a variety of lenses–the biases of the health care system, financial impacts, the importance of pacing, the challenge of cognitive impairments, menstruation, disability rights, and so on.

I spoke earlier today with writer Fiona Lowenstein, the book’s editor, who brought public attention to the issue of prolonged recovery early in the pandemic through a prescient opinion piece in The New York Times in April, 2020. Lowenstein is a founder of Body Politic, the wellness collective that generated early survey data about persistent symptoms after acute bouts of Covid-19. Our conversation also included two contributors to The Long COVID Survival Guide. Lisa McCorkell works with the Patient-Led Research Collaborative, which arose out of Body Politic’s efforts, and wrote about how to parse medical research; Padma Priya, an Indian journalist, wrote about the importance of peer-to-peer and community support, especially in countries with fewer medical resources.

Thanks to all three of them! I have posted the conversation on YouTube and below.

https://www.virology.ws/

 

[Sly Saint]

Merged thread

Panel Discussion: The Long COVID Survival Guide, Jan 26 2023

Thursday, January 26, 2023, 7 - 8:15 PM
End times are approximate. Events may end early or late.
Location

Online
Andrew Heiskell Braille and Talking Book Library

Event Details
Author Panel, Hosted online by the Andrew Heiskell Library, Thursday January 26th, 2023, 7:00 – 8:15 PM on Google Meet. This event will take place online.

The Long COVID Survival Guide: How to Take Care of Yourself and What Comes Next--Stories and Advice from Twenty Long-Haulers and Experts. The first patient-to-patient guide for people living with Long COVID—with expert advice on getting diagnosed, dealing with symptoms, accessing resources and accommodations, and more.

For people living with Long COVID, navigating the uncharted territory of this new chronic illness can be challenging. With over two hundred unique symptoms, and with doctors continuing to work toward a cure, people experiencing Long COVID are often left with more questions than answers. Twenty contributors—from award-winning journalists, neuroscientists, and patient-researchers to corporate strategists, activists, and artists—share their stories and insight on topics including:

• getting diagnosed
• finding a caregiver
• navigating employment issues
• dealing with fatigue and brain fog
• caring for your mental health, and more.

https://www.nypl.org/events/programs/2023/01/26/panel-discussion-long-covid-survival-guide