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Long COVID survival guide, out Nov 8 2022

Discussion in 'Long Covid news' started by Cheshire, Oct 27, 2022.

  1. Cheshire

    Cheshire Moderator Staff Member

    The LC survival guide is a a peer-to-peer advice book, edited by Fiona Lowenstein.


    Events will take place for its release (one of which will be hosted by @dave30th )

  2. John Mac

    John Mac Senior Member (Voting Rights)

    David Tuller has spoken with the author.

    Trial By Error: The Long COVID Survival Guide and the Role of Patients in Research

    22 November 2022 by David Tuller 1 Comment

    By David Tuller, DrPH

    The Long COVID Survival Guide: How to Take Care of Yourself and What Comes Next—Stories and Advice from Twenty Long-Haulers and Experts” is pretty much what it sounds like. The anthology was published earlier this month, and each chapter is written by one or more contributors. The topics covered address long Covid through a variety of lenses–the biases of the health care system, financial impacts, the importance of pacing, the challenge of cognitive impairments, menstruation, disability rights, and so on.

    I spoke earlier today with writer Fiona Lowenstein, the book’s editor, who brought public attention to the issue of prolonged recovery early in the pandemic through a prescient opinion piece in The New York Times in April, 2020. Lowenstein is a founder of Body Politic, the wellness collective that generated early survey data about persistent symptoms after acute bouts of Covid-19. Our conversation also included two contributors to The Long COVID Survival Guide. Lisa McCorkell works with the Patient-Led Research Collaborative, which arose out of Body Politic’s efforts, and wrote about how to parse medical research; Padma Priya, an Indian journalist, wrote about the importance of peer-to-peer and community support, especially in countries with fewer medical resources.

    Thanks to all three of them! I have posted the conversation on YouTube and below.

    ahimsa, Louie41, Kalliope and 7 others like this.
  3. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Merged thread

    Panel Discussion: The Long COVID Survival Guide, Jan 26 2023

    Thursday, January 26, 2023, 7 - 8:15 PM
    End times are approximate. Events may end early or late.

    Andrew Heiskell Braille and Talking Book Library

    Last edited by a moderator: Jan 1, 2023
    Peter Trewhitt likes this.

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