Llewellyn King: "Congress to Hear From an Army of Very Sick Petitioners"

[Webdog]

http://www.insidesources.com/congress-hear-army-sick-petitioners/

A different voice will be heard on Capitol Hill on May 12 to 15: a gentle, sad voice coming not from lobbyists or politicos but from an irregular army of sick people. It is a voice that has grown stronger in recent years but is still just a zephyr among the hurricane winds that blow in Congress. For Congress, it will be an invasion of sighs.

They will be on the Hill to petition their government for more research funding for the disease Myalgic Encephalomyelitis (ME), also known as Chronic Fatigue Syndrome (CFS).

 

[Barry]

Good article.

 

[Webdog]

Now on White House Chronicle website.

http://whchronicle.com/congress-to-hear-from-an-army-of-very-sick-petitioners/

 

[Alvin]

I expect they will be told we support you and will get right on that, then make token moves or promptly forget
Right now is not the time to get results, the party in power believes that people with disabilities are lazy, entitled and worse.
That said if this is an annual event then thats good, keep reminding them and a better party in power in future is more likely to get positive results.

 

[Yessica]

Thank you @Webdog for sharing those. And a big thank you to Llewellyn King!

I'm going to pass it on to people that I'd like for them to know more about ME. It's perfect for what I need. It's concise, covers several points and is very well written.

 

[Forbin]

Actually I think it is important to lobby legislators regardless of which party is in power.

We need Senator Foghorn Leghorn going to the NIH Budget review meeting and saying, "Now Francis, I see y'all only got $5 million going to this ME/cfs disease thing. Now, I've been gettin' an earful from my constituents telling me that this is some kind of horrific disease that affects a couple of million Americans, and that it needs to be addressed, pronto! So why don't we just bump up that number a bit?"

"Yes sir! We could easily spend $X million on it this year, Senator, and we've been thinking of establishing a center of excellence in your home state!"

"I like the way you think, Son. I'm sure we can find the money you need somewhere in this budget. Why don't you knock off all those damn telephone surveys in Wichita, Kansas. I swear, I didn't get but three lousy votes in Wichita when I ran for President last year!"

 

[Alvin]

Actually I think it is important to lobby legislators regardless of which party is in power.

We need Senator Foghorn Leghorn going to the NIH Budget review meeting and saying, "Now Francis, I see y'all only got $5 million going to this ME/cfs disease thing. Now, I've been gettin' an earful from my constituents telling me that this is some kind of horrific disease that affects a couple of million Americans, and that it needs to be addressed, pronto! So why don't we just bump up that number a bit?"

"Yes sir! We could easily spend $X million on it this year, Senator, and we've been thinking of establishing a center of excellence in your home state!"

"I like the way you think, Son. I'm sure we can find the money you need somewhere in this budget. Why don't you knock off all those damn telephone surveys in Wichita, Kansas. I swear, I didn't get but three lousy votes in Wichita when I ran for President last year!"

I agree, i am just saying right now don't be surprised if it falls flat and don't stop trying if it does.

 

[Webdog]

Right now is not the time to get results, the party in power believes that people with disabilities are lazy, entitled and worse.

Perhaps. But I've been sick since the Carter administration, and this is the first time in my life I've had real hope for some improvement.

 

[Alvin]

Perhaps. But I've been sick since the Carter administration, and this is the first time in my life I've had real hope for some improvement.

I understand, i think my second reply wrapped up my point better, its a good idea to petition congress but right now the party in power believes in taking healthcare away (and tried unsuccessfully) because people with disabilities are contemptible so don't be surprised if you get no traction but tomorrow is a new day, try today but if you hit a wall a better party in power in the future may be more receptive.