Living with Long Covid: A Young Person’s Guide

Contains such gems as


The Long Covid Clinic also offered the opportunity to speak to a psychologist to help me process it all. But despite doctors telling me it was a physiological issue, the therapist told me that my symptoms were completely psychological.

She offered me EMDR therapy and said that she
could cure me, because it was all in my mind. I was taken aback, because lots of tests I’ve had have shown things that are wrong, and I’ve been
diagnosed with Long Covid.

Luckily my family are really supportive and always told me that what I was going through is real, and I found some doctors within the system who were helpful too.

ETA EMDR is energy intensive . Used a lot for PTSD.
 
I don't know how I would react to this if I was a young person still ill months after Covid 19. But what comes across most to me is the way everything seems to be pigeonholed into sociopolitical boxes and a sort of 'omnispeak' that is supposed to appeal to 'the masses' yet somehow forgets to avoid putting in technical terms that hardly anybody knows about.

I guess I think it tries too hard. There are much simpler ways of explaining that people of all ages go on feeling terrible for a long time after Covid - probably for lots of different reasons rather than because of some 'condition' called 'Long Covid'.

It has the humanities rightspeak all over it for me. Not to mention the drawings - why do we need those?

Maybe I am old, but I am not sure that is all there is to it.
 
Amw66 said:
The Long Covid Clinic also offered the opportunity to speak to a psychologist to help me process it all. But despite doctors telling me it was a physiological issue, the therapist told me that my symptoms were completely psychological.
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I wonder what message the reader is supposed to take away? A sympathetic counselling psychologist might be the best option for someone with LC. Nobody else much can help. Would readers be put off? Is it really sensible to have these 'stories' rather than a plain English explanation of the possible pitfalls when negotiating health care?
 
Jonathan Edwards said:
I don't know how I would react to this if I was a young person still ill months after Covid 19. But what comes across most to me is the way everything seems to be pigeonholed into sociopolitical boxes and a sort of 'omnispeak' that is supposed to appeal to 'the masses' yet somehow forgets to avoid putting in technical terms that hardly anybody knows about.

I guess I think it tries too hard. There are much simpler ways of explaining that people of all ages go on feeling terrible for a long time after Covid - probably for lots of different reasons rather than because of some 'condition' called 'Long Covid'.

It has the humanities rightspeak all over it for me. Not to mention the drawings - why do we need those?

Maybe I am old, but I am not sure that is all there is to it.
Click to expand...
It takes in 15-25 year olds - that's a huge spread, so trying to be relevent to everyone and factor in brain fog I suspect.

I wonder how much of a co-production this was - whether those providing the testimony were involved in the development of the final product.

Graphics are loved by PR . It's trendy . These are trying too hard.

Whilst text can be hard to process , some better diagrams would have been useful .

My daughter would probably roll her eyes..
 
Jonathan Edwards said:
I wonder what message the reader is supposed to take away? A sympathetic counselling psychologist might be the best option for someone with LC. Nobody else much can help. Would readers be put off? Is it really sensible to have these 'stories' rather than a plain English explanation of the possible pitfalls when negotiating health care?
Click to expand...
It probably provides validation for others who have experienced the same thing. Power asymmetry will factor into this type of consultation, and how that plays out is very individual.

.it would have been useful to have provided evidence / info as to why this is so crap and what could be offered instead ..
 
Amw66 said:
Power asymmetry will factor into this type of consultation, and how that plays out is very individual.
Click to expand...

But doesn't this way of doing things play into the power struggle / lack of trust scenario?
Are readers going to be reassured ?

Why not just say that health workers have different views on the best way to deal with things. Our view is... Then those who encountered psychologisation can think 'OK, that figures'.
 
I was diagnosed aged 22 (though had been ill for about 3 1/2 years by then) by a GP registrar who wasn't much older than me and who treated me like an equal. She was sympathetic but also quite blunt and told me I'd probably never be the same again. Of course, being 22, I didn't believe her but I've always been grateful for her honesty, though regret that she was right.

I would have found this leaflet 'super' patronising but then I'm a different generation.
 
This is part of a graphic series. You can find them all here.
Can't find the date for when it was published, so don't know how recent it is.


Long Covid Lives: A graphic series​

Long Covid Lives is a three-part graphic series which explores the lived experiences of young people living with Long Covid. Part one explores how the three main characters navigate accessing care and support, part two explores the multiple impacts of Long Covid and pandemic on young people's lives, and part three explores how young people adapt and remake their worlds in order to live with Long Covid.

Long Covid: A Young Person’s Guide​

This illustrated guide explores what it is like to live with Long Covid as a young person, told from the perspective of those who have lived it. It represents key messages from our research data including: what it’s like living with Long Covid as a young person, the importance of pacing, navigating social life, accessing care and support, and how to be a good ally to someone experiencing Long Covid. The guide includes ‘tips and tricks’, lived experience case studies, and practical advice for young people, parents/carers, and practitioners.

Living with Long Covid: A Young Person’s Glossary​

This illustrated lived experience glossary explains medical terms related to Long Covid in an accessible way, accompanied by descriptions of what these symptoms are like and how they feel in young people's own words. This resource might be helpful for anyone wanting to learn more Long Covid experience and key terms.
 
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