I enjoyed watching this documentary recently, absolutely heartbreaking Living Proof (2017) https://www.imdb.com/title/tt6604174/ If ME ever gets to the stage where MS is in terms of awareness, research funding, pharmaceutical industry involvement and treatments, this story shows how patient communities really need to be careful with big pharma and future non-profits that might have too close ties. If what was said in the documentary is true, none of the myriad of drugs available to date for MS from big pharma actually significantly slow down progression long-term compared to not taking any treatment at all. The national MS society only pushes for research and treatments that are $$$$ and don’t really help anyone other than making big pharma richer than ever at patients’ expense. The documentary also focuses on how the son with MS and his father did a great deal of research and discovered how some major dietary changes, vitamin D supplementation, exercise, and surgery to correct possible CCSVI can actually work better at slowing or halting progression than big pharma’s drugs for a subgroup of people with MS. The son follows all of the above and hasn’t progressed in many years. I believe they also said his father was the person who discovered the link between sun exposure, vitamin D and MS incidence. They also give all this information and help away for free and do not profit from it.