Its only really something of value if you find yourself in hospital for ME symptoms and they aren't treating you within the guidelines. At which point you have prepared a withdrawal of consent from the current doctor causing you concern. I can see it having its uses, I avoid hospitals completely because their chance of hurting me is much higher than not given how the NHS treats ME/CFS patients. The last time I went into hospital I arranged transport and a series of adjustments to ensure the trip did not cause me PEM and every single aspect of what I had agreed was broken, from the transport through to the waiting, lighting, noise etc. There is good reason not to trust the NHS when it comes to treatment of ME/CFS patients at the current time and I think having a basic withdrawal of consent to hopefully avoid the need to have Action for ME or similar lawyers extract you from a Psychologists hold I think is valuable. I have seen too many ME/CFS patients tortured against their will and now we have the guidelines it should be possible to stop it without the need for malpractice lawyers sent into the hospital. It should limit the harm the cabal of psychologists who refuse to adopt the guidelines can do without putting themselves in legal hot water. They still represent the bulk of ME/CFS "specialists" you might see, things are only changing very slowly. What it wont do is make a hospital a safe place for an ME patient, until they can accommodate our needs its still a place more like to harm than help even when treating something else. Edit: I can also see me using this against one of the GPs in my current GP office, I am pretty certain he doesn't believe in a biological basis for any chronic illness so I really want nothing to do with him and if I get to the stage to exclude him it will be a formal withdrawal of consent to be spoken to by this doctor. I have had quite enough of these types.