Can any of those who’ve been doing keto update their condition please?
I haven't posted for a long time because I now visit this site only occasionally. This is because I have had such a marked improvement, which I attribute to adopting a ketogenic diet with time restricted eating, that I am too occupied with other things.
It is only a partial remission though and doing these other things does exhaust me; there is nothing left for anything else.
So some facts about my situation. I am female, almost 70 years old and gradually succumbed to fairly mild ME/CFS about 20 years ago, with no obvious trigger, though severe stress (sudden death of a spouse) was presumably a factor. I had a remission period of about five years, then relapsed about 10 years ago. Then I got steadily worse, though never more than moderate.
I have long eaten a very healthy, lowish carb diet; no processed foods, plenty of vegetables, unrestricted high quality fats, plenty of protein, but about 18 months ago I came to realise that my blood glucose control was far from ideal; I was prediabetic. This galvanised me to adopt a ketogenic diet, and this thread, alerting me to the possibility that it might help the disease, was an added inducement. Adapting to very low carb was not difficult for me, given my previous eating pattern. Time restricted eating took more getting used to and I eased into this gradually. At first I just skipped dinner a couple of times a week, gradually working up to two meals every day, then I gradually worked up to one meal a day for four days a week, two meals for the other three days.
I did this because I observed that one meal a day triggered weight loss. Over about 12 months I have lost all the weight I put on since getting sick - 15 kg. Now I am back to two meals each day. I choose breakfast and lunch, but many find lunch and dinner better. It doesn't matter, the point is to give the body a decent time - 16-18 hours to clean out glycogen stores, mobilise fat stores and do its cellular housekeeping.
The other thing I think is important, particularly if you adopt a ketogenic diet more or less permanently, is ensuring your gut flora are well fed. To this end I incorporate prebiotic foods such as green banana and raw potato (no carbs if uncooked but rich in resistant starch to feed gut bugs), onion, asparagus etc as well as a variety of concentrated prebiotic fibres (inulin, psylium, larch extract, PGX, baobab, acacia gum, pectin, XOS, GOS) into my daily diet.
I was delighted with the weight loss and with my blood glucose measurements returning to a healthy range, but very gradually I began to realise that I was able to do a bit more. At first it was just imagining I could do stuff, then I had the motivation and ability to actually do it. I started walking and stretching, at first just 5 min each with a rest in between, but I was able to build up to 15 min each. (When I can do 30 min each I'm going to try yoga classes again.)
Then I had the energy to conceive of a project to replant my front garden. In a former life I was a passionate gardener and had a beautiful garden. This had been totally neglected and fallen into disarray as it became too difficult to find reliable help with garden maintenance. In the end I got someone to remove all the plants from my small front garden to try to get on top of a serious weed problem, and there it remained vacant and ugly, offensive to me but I couldn't do anything about it.
Gradually I was able to come up with a plan and after getting someone to dig over the soil, went shopping for plants and started planting, just a little each day. I must say this did utterly exhaust me and I had to take a week out in the middle to do nothing but rest, but I did it in the end. I've also made a plan to tackle the back garden, though for that I will need help and it will have to wait while I do other things.
Since the garden success I have done other things that had previously been impossible; I've been on a 5 day trip and am planning a two week trip next year; my creativity is returning and I made jewellery for family and friends for Christmas; I've had friends over for dinner. I can't do anything else when I undertake such projects and I need a good period of doing nothing afterwards, but it is a vast improvement on getting tired just from contemplating such activities.
So I would say it's definitely worth a try, both the ketogenic diet and some sort of time restricted eating.
I would also strongly recommend the link in the post above from
@Dolphin. The resources listed in the blog are all ones that I found invaluable in guiding my dietary choices and settling on the time restricted eating pattern.