Juvenile myasthenia gravis unmasked: a case of a teenage female (with CFS diagnosis) who presented in acute respiratory failure, 2020, Leyens

Dolphin

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https://pediatrics.aappublications.org/content/146/1_MeetingAbstract/316

Juvenile myasthenia gravis unmasked: a case of a teenage female who presented in acute respiratory failure
Kathryn Leyens and Tony Tarchichi
Pediatrics July 2020, 146 (1 MeetingAbstract) 316; DOI: https://doi.org/10.1542/peds.146.1_MeetingAbstract.316

Case: A 16-year-old African-American female with a history of chronic fatigue syndrome, depression, dysphagia, and TMJ presented as a transfer from an outside hospital where she had presented with sore throat, difficulty breathing, and abdominal pain and received ceftriaxone and azithromycin with subsequent complication of acute hypercapnic respiratory failure requiring intubation. Further chart review revealed one year of progressive difficulties with coordination, fatigue, speech, swallowing, and jaw pain. Upon arrival to the pediatric intensive care unit, the patient was intubated and hemodynamically stable. Neurology was consulted due to …
 
Juvenile CFS cast as fatigue - little knowledge of comorbidities or the full range of symptoms , especially if severely affected ( remember EC thinks school is doable for an hour if severely affected) - this may highlight how preconceptions govern treatment.
I can't access full article to see how the MG diagnosis was determined , but the presentation looks like a severely affected child and / or severe PEM.
A lot of the symptoms, sadly, are not uncommon.
 
Juvenile CFS cast as fatigue - little knowledge of comorbidities or the full range of symptoms , especially if severely affected ( remember EC thinks school is doable for an hour if severely affected) - this may highlight how preconceptions govern treatment.
I can't access full article to see how the MG diagnosis was determined , but the presentation looks like a severely affected child and / or severe PEM.
A lot of the symptoms, sadly, are not uncommon.

Not uncommon, yet I still feel angry when I read of medical malpractice like this...
 
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