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Janet Wisely gets on OBE after years of approving ethics of SMILE, PACE, etc at NREAP. [Minutes of their discussions included]

Discussion in 'Psychosomatic news - ME/CFS and Long Covid' started by Esther12, Jan 4, 2018.

  1. Esther12

    Esther12 Senior Member (Voting Rights)

    It's that time of year again... when they worst people in Britain are celebrated by being given the chance to grovel on their knees in exchange for a special badge. One of this years remarkable people is Janet Wisely.

    I was planning to go through all the minutes of all the National Research and Ethics Advisory Panel Meetings, but I've only ended up doing a little more than a years worth. I want to come back to this, it was pretty interesting Also, it seems like @maxwhd from twitter has already done something similar here, focussing more on PACE excerpts: http://www.twitlonger.com/show/n_1so4td9

    The full list of minutes are here: https://www.hra.nhs.uk/about-us/committees-and-services/nreap/nreap-meetings/

    I focussed on the time when SMILE came up a lot.

    10 November 2010:


    08 December 2010:


    12 January 2011



    Minutes for 9th March meeting seem to be missing. What happened here?! Next they were contacting 'Understanding Animal Research'!

    April 13 2011:


    08 June 2011


    13 July 2011

  2. Esther12

    Esther12 Senior Member (Voting Rights)

    Last edited: Jan 4, 2018
  3. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

    London, UK
    'Trish Groves (MBBS, MRCPsych) trained in medicine and psychiatry before going to The BMJ in 1989. She is now director of academic outreach and advocacy for BMJ, editor in chief of the online only journal BMJ Open, and honorary deputy editor of The BMJ.'

    What a Lilliputian world we live in. It's a bit like celebrities congratulating each other on a Christmas panel game. The only difference is that it is so much more sinister.

    Sometimes I do wish I tweeted, but I like the delusion that there is still a nice little old world one can live in without twitter where people behave properly (complete delusion I know).
    Hutan, pteropus, Barry and 17 others like this.
  4. Revel

    Revel Senior Member (Voting Rights)

    Hey, don't overcrowd me!

    Hutan, Woolie, Viola and 8 others like this.
  5. Adrian

    Adrian Administrator Staff Member

    I wonder if concerns that a future review process may be more rigorous and bring up the issues again means that Crawley went through the backdoor to approve the full trial via a protocol change on the existing ethical permission.
    Woolie, Valentijn, Esther12 and 5 others like this.
  6. Esther12

    Esther12 Senior Member (Voting Rights)

    That's an interesting point. I hadn't thought of that.

    Alternatively, they seemed to shift to the view that concern about SMILE was anti-science harassment, so maybe they'd have been keen to 'stand up for science'?
    Luther Blissett, Inara, Barry and 5 others like this.
  7. Esther12

    Esther12 Senior Member (Voting Rights)

    Some older minutes relating to PACE. Also, this thread hasn't been replied to since the HRA letter on PACE, so could be of more interest now? These minutes are hosted by the HRA, but may have been from a precursor?

    After going through the minutes of this committee I've just realised that I posted a summary maxwhd had written of the same documents in the first post of the thread. I wish I'd spotted that an hour ago.

    12May2010 https://s3.eu-west-2.amazonaws.com/www.hra.nhs.uk/media/documents/2010-05-12_NREAP_Minutes_Final.pdf

    This response to being told that a participant can have their data removed from PACE is so typical of a certain sort of academic - throw a hissy fit and talk rubbish about how disastrous it is for you to not get everything you want:

    09June2010 https://s3.eu-west-2.amazonaws.com/www.hra.nhs.uk/media/documents/2010-06-09_NREAP_Minutes_Final.pdf

    14July2010: https://s3.eu-west-2.amazonaws.com/www.hra.nhs.uk/media/documents/2010-07-14_NREAP_Minutes_FINAL.pdf

    11August2010: https://s3.eu-west-2.amazonaws.com/www.hra.nhs.uk/media/documents/2010-08-11_NREAP_Minutes_FINAL.pdf

    And now we're up to the 10th November meeting in the first post of this thread.
    Last edited: Apr 16, 2021
    Amw66 and Sean like this.

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