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Janet Wisely gets on OBE after years of approving ethics of SMILE, PACE, etc at NREAP. [Minutes of their discussions included]

Discussion in 'PsychoSocial ME/CFS News' started by Esther12, Jan 4, 2018.

  1. Esther12

    Esther12 Senior Member (Voting Rights)

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    It's that time of year again... when they worst people in Britain are celebrated by being given the chance to grovel on their knees in exchange for a special badge. One of this years remarkable people is Janet Wisely.

    I was planning to go through all the minutes of all the National Research and Ethics Advisory Panel Meetings, but I've only ended up doing a little more than a years worth. I want to come back to this, it was pretty interesting Also, it seems like @maxwhd from twitter has already done something similar here, focussing more on PACE excerpts: http://www.twitlonger.com/show/n_1so4td9

    The full list of minutes are here: https://www.hra.nhs.uk/about-us/committees-and-services/nreap/nreap-meetings/

    I focussed on the time when SMILE came up a lot.

    10 November 2010:

    https://www.hra.nhs.uk/documents/343/2010-11-10_NREAP_Minutes.pdf

    08 December 2010:

    https://www.hra.nhs.uk/documents/344/NREAP_Minutes_2010-12-08_FINAL.pdf

    12 January 2011

    https://www.hra.nhs.uk/documents/345/NREAP_Minutes_2011-01-12_FINAL.pdf

    https://www.hra.nhs.uk/documents/346/NREAP_MINUTES_2011-02-09_FINAL.pdf

    Minutes for 9th March meeting seem to be missing. What happened here?! Next they were contacting 'Understanding Animal Research'!

    April 13 2011:

    https://www.hra.nhs.uk/.../NREAP_MINUTES_2011-04-13_-_revised_2012-01-11.pdf

    08 June 2011

    https://www.hra.nhs.uk/documents/350/NREAP_MINUTES_2011-06-08_FINAL.pdf

    13 July 2011

    https://www.hra.nhs.uk/documents/351/NREAP_MINUTES_2011-07-13_FINAL.pdf
     
  2. Esther12

    Esther12 Senior Member (Voting Rights)

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    Last edited: Jan 4, 2018
  3. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    'Trish Groves (MBBS, MRCPsych) trained in medicine and psychiatry before going to The BMJ in 1989. She is now director of academic outreach and advocacy for BMJ, editor in chief of the online only journal BMJ Open, and honorary deputy editor of The BMJ.'

    What a Lilliputian world we live in. It's a bit like celebrities congratulating each other on a Christmas panel game. The only difference is that it is so much more sinister.

    Sometimes I do wish I tweeted, but I like the delusion that there is still a nice little old world one can live in without twitter where people behave properly (complete delusion I know).
     
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  4. Revel

    Revel Senior Member (Voting Rights)

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    Hey, don't overcrowd me!

    26614-My-Own-Little-World.jpg
     
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  5. Adrian

    Adrian Administrator

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    I wonder if concerns that a future review process may be more rigorous and bring up the issues again means that Crawley went through the backdoor to approve the full trial via a protocol change on the existing ethical permission.
     
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  6. Esther12

    Esther12 Senior Member (Voting Rights)

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    That's an interesting point. I hadn't thought of that.

    Alternatively, they seemed to shift to the view that concern about SMILE was anti-science harassment, so maybe they'd have been keen to 'stand up for science'?
     
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