ITV Channel News: "Living with ME: Gary Burgess shares his story"

[Andy]

ITV Channel TV journalist, Gary Burgess, is sharing his experience of living with ME, ahead of a screening of a film about the illness in Jersey.

ME, also known as Cronic Fatigue Syndrome, is a condition that causes severe fatigue, chronic pain, as well as a loss in concentration known as "brain fog".

Gary has been signed off from work for 14 months, after being diagnosed last year and describes the illness as like having a "battery that won't charge".

ME can be really hard to explain because you can't see it.

The best way I describe it is, imagine you've got an old mobile phone where the battery won't fully charge. ME is like that.

I start my day with a battery that's barely charged overnight and stuff that shouldn't use much energy really knackers my battery.

– Gary Burgess, ITV Channel TV journalist
Since his diagnosis, Gary has set up an online support network called "Zonked Club", which aims to offer support for people with fatigue-linked illnesses.

http://www.itv.com/news/channel/2018-02-22/living-with-me-gary-burgess-shares-his-story/

 

[Sly Saint]

Have sent this link to all email contacts I have for ITN (ie including Ch4 News and Dispatches); sounds harsh but maybe they might be more receptive now 'one of their own people' has ME.

 

[Barry]

"Cronic Fatigue Syndrome"????!! and these are journalists

But one with brain fog?

 

[Frogger]

Here is the story on YouTube:

Gary Burgess - Talking ME/CFS on ITV News

 

[Sasha]

https://twitter.com/bbc5live/status/983384389756256257

Congratulations, @Gary Burgess!

 

[dangermouse]

Congratulations @Gary Burgess

Hope you're OK.

 

[adambeyoncelowe]

https://twitter.com/bbc5live/status/983384389756256257

Congratulations, @Gary Burgess!

<3

 

[Sly Saint]

see also:
https://www.s4me.info/threads/gary-...lism-can-be-a-force-for-good.2840/#post-59772