Isla Kidd and her family

Tilly said:
If you read my blog from 2019 of my open letter to McFarlen

https://tillymoments.blogspot.com/2019/ is open on my blog but have attached the letter sent
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There are no words to explain the fear I feel for all our children/young adults as the Government are ensuring support to get them into education or work. BACME and their lack of understanding is going to cause unprecedented numbers of accusations and with ME A accepting or ignoring FND as diagnosis alongside ME, it is going to be unstoppable.

There is no acceptance of MCAS, hEDS EDS, POTS as part of ME. They are not looked for, yet NHS has them listed as diagnosable in their own right so this is another problem.. We need to find ways of recording the data of how many young people suffering with these multisystem changes, when in a PEM state and how that impacts their energy in a graph form or other useful visual. I believe that the Visable app points these changes out well and now they include a sleep part to this, we need to find a way of publicly reporting and insisting that Drs use this app, especially when they state that they need to go to school or accuse mothers of FII etc.

Remember there is no way of recording a child's ability when they are taken into care after a mother is accused. If the child declines in health it is said to be the influence of the mother, fabricating and inducing the illness not an illness that is serious. Their understating from decades of teaching is that a child will get better with determination and push through with tough love.

The young persons lack of engaging with education, therapists such as OT or physios that they believe causes the decline in their illness rather than a disease that causes them to loose energy that will be put before the court. Would anyone be able to explain to the any professional or judge against the teaching of FND; now in every hospital or BACME disordered eating or psychological issues they find in those with cfs ME? It is after all only about perceived fatigue!
 
Is there any legal recourse for these cases? ME/CFS is a documented illness and we have the NICE guideline.

I am very worried about the children, too; what are they supposed to do? Is it possible to legally protect them from the state's failure to recognize their disability and health consequences?
 
Ariel said:
Is there any legal recourse for these cases? ME/CFS is a documented illness and we have the NICE guideline.

I am very worried about the children, too; what are they supposed to do? Is it possible to legally protect them from the state's failure to recognize their disability and health consequences?
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I haven't found any, the state knows what it is doing that is the problem, this is why there has been no change for decades. There are good people out there but they are targeted too
 
I wonder what the relevant legislation is. Seems like a human rights violation but I don't know if we have strong protections. Can you appeal to the equality act in this situation? I realize all of that takes money for lawyers and so on that people do not have.

The state would have to insist on claiming she doesn't actually have ME/CFS, no? (And that this is something her mother did?)
 
The argument would be that there are significant concerns the child is being abused, and must be removed from the parent. This would need to be argued to a judge to make an order for removal.
The problem is that the “state” cannot provide the sort of care a child with ME needs, and the child is likely plonked with some foster carers or in a hospital bed.
The removal period would allow time to assess the child away from the parent suspected of FDIA, which is all well and good except when they finally do find there’s no evidence, and the child actually just has ME, you’ve got a much sicker kid at the end of it as well as a traumatised parent.
 
MrMagoo said:
The argument would be that there are significant concerns the child is being abused, and must be removed from the parent. This would need to be argued to a judge to make an order for removal.
The problem is that the “state” cannot provide the sort of care a child with ME needs, and the child is likely plonked with some foster carers or in a hospital bed.
The removal period would allow time to assess the child away from the parent suspected of FDIA, which is all well and good except when they finally do find there’s no evidence, and the child actually just has ME, you’ve got a much sicker kid at the end of it as well as a traumatised parent.
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That nothing generally shows up in blood tests will only further the accusations against mum .
 
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