I know muscular weakness is common in ME patients but I sometimes wonder if there isn’t more to mine. I’m wondering if testing for myasthenia gravis should be done. I’ve had 2 negative EMG’s but I know you can still have MG even in that case. I have moderate ME and it seems to me the muscular weakness and fatigue is too intense for what it should be. It’s also increased with time, slowly over the 3 years + I’ve had ME. Brushing my dog, washing my hair, pouring coffee or doing any repetitive movement for more than 5-15 seconds will start being excessive and leave me weak and almost shaking. A few weeks ago, I even had difficulty holding my head for 48 hours. My neck felt too weak to hold the weight of my head. Is anybody else in the same situation ? MG can affect lungs and sometimes, although rarely, cause respiratory crisis where people have to be put on respirators until they gain muscle strength. That’s a scary though !