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Influence of Codiagnosis of CFS & Habitual Physical Exercise on the Psychological Status and Quality of Life of Patients with Fibromyalgia 2022 Ortega

Discussion in 'Psychosomatic research - ME/CFS and Long Covid' started by Sly Saint, Sep 29, 2022.

  1. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Influence of Codiagnosis of Chronic Fatigue Syndrome and Habitual Physical Exercise on the Psychological Status and Quality of Life of Patients with Fibromyalgia

    Abstract
    Fibromyalgia (FM) and Chronic Fatigue Syndrome (CFS) are two diseases that are frequently codiagnosed and present many similarities, such as poor tolerance to physical exercise. Although exercise is recommended in their daily routine to improve quality of life, little is known about how CFS codiagnosis affects that.


    Using scientifically validated questionnaires, we evaluated the psychological state and quality of life of patients with FM (n = 70) and how habitual physical exercise (HPE) reported by patients with only FM (FM-only n = 38) or codiagnosed with CFS (FM + CFS, n = 32) influences those aspects. An age-matched reference group of “healthy” women without FM (RG, n = 70) was used. The FM-only group presented a worse psychological state and quality of life compared to RG, with no influence of CFS codiagnosis.

    The patients of the FM-only and FM + CFS groups who perform HPE presented better levels of stress and state anxiety, but with no differences between them. Depression and trait anxiety improved only in women with just FM. CFS codiagnosis does not worsen the psychological and quality of life impairment of FM patients and does not have a great influence on the positive effect of HPE.

    https://www.mdpi.com/2077-0383/11/19/5735

    peer review record
    https://www.mdpi.com/2077-0383/11/19/5735/review_report
     
    Peter Trewhitt and RedFox like this.
  2. Trish

    Trish Moderator Staff Member

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    The authors appear to be clueless about CFS.
    Here's a section from the introduction (my bolding):

    CFS is characterized by disabling fatigue lasting more than 3 months, which further worsens the course and development of the disease and makes it even more difficult to acquire routines that include exercise. For people with CFS, exercise also seems to significantly improve health status, physical fitness, and quality of life, thus having a direct impact in fatigue, but literature is still scarce in this regard. People with CFS tend to have an aversion to exercise to avoid symptom aggravation. Because of this, they do not (attempt to) engage in physical activities and become completely sedentary [9].
     
  3. Midnattsol

    Midnattsol Moderator Staff Member

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  4. rvallee

    rvallee Senior Member (Voting Rights)

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    Beginning with a lie. They are, in fact, usually not diagnosed. Present, yes, but the vast majority of those are told they're not going to be "labeled" with those since "there's nothing I can can do to help you anyway". Diagnosis is not a symbolic thing, it doesn't happen in the mind of the clinician, it's a process that ends up in a record. When it's not recorded, that means it's not diagnosed.
    This reads like dehydrated homeopathy. Words and their meaning, such a difficult thing to master.
    I'm sorry, the disease... worsens the course of the disease? I'm really not sure they understand why people even use words. And we have difficult "acquiring" routines? That's just weird as hell.
    Trust us, we're experts? The power of evidence-based medicine in a nutshell: it's evidence-based, but we can't find any. It's amazing that they don't realize they are doing exactly the same thing as people who are annoyed that they can't find any scientific evidence for Flat Earth and other nonsense. Literally the same.
    When you have absolutely zero basic knowledge about the topic you are "studying". And: screw up, "do not attempt to". You know nothing about us, GTFOH.

    I don't even understand what conclusion they were trying to squeeze out of that stone. The idea that research devoid of any quality or basic knowledge about the issue they are researching amounts to real work is plain bizarre. This is not real work.
     
  5. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    from reading the reviewers comments (which are quite critical, particularly reviewer 3) they are also unfamiliar with CFS, but at least had the common sense to look up the diagnosis, although it was hardly the most widely used/up-to-date version.
     
  6. RedFox

    RedFox Senior Member (Voting Rights)

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    The paper claims:
    It's interesting to follow the citation to see where they get this claim. It's from this paper: Training Individuals With Chronic Fatigue Syndrome, which is equally bad. The authors seem to have no ME expertise, they also get everything wrong, the paper is just their opinion (it's not an experiment), and it's from 2008.

    It's very strange that they cited this paper rather than something newer. This was before even the PACE trial. There's a ton of research on GET that's more rigorous than (essentially) the opinion of two people. Thinking about this further...I wonder if the authors are so clueless or out of touch that they don't even have a modern BPS view. They seem to demonstrate little familiarity of GET--their paper never mentions it. A lot of the research they cite is fairly old. I skimmed their citations, and they only cited two papers about GET: The Cochrane review and this one.
     
  7. chrisb

    chrisb Senior Member (Voting Rights)

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    It took me about ten minutes just to understand the title, being unsure whether Habitual Physical Exercise was a diagnosis. I think I see what they are trying to say, but it would help if the first sentence were lucid. After that, reading the text seemed unlikely to be profitable.
     
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  8. Sean

    Sean Moderator Staff Member

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    :D

    That would be because the literature contradicts that claim.
     
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  9. Milo

    Milo Senior Member (Voting Rights)

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    Oy, oy, oy! Did the journal receive a bribe to publish this paper?
     
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  10. Arnie Pye

    Arnie Pye Senior Member (Voting Rights)

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    I'd love to know how questionnaires are scientifically validated.
     
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  11. Sean

    Sean Moderator Staff Member

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    I'd love to know why they feel the need to state that they are using 'scientifically validated' measurement tools.

    One would hope they are in a science paper.
     
    Trish likes this.
  12. RedFox

    RedFox Senior Member (Voting Rights)

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    This is pretty common language to use an a research paper. It's not related to the paper's poor quality.
     
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  13. rvallee

    rvallee Senior Member (Voting Rights)

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    Honestly, I doubt it's anything beyond: scientists did it, they validated it. I'm not even sure what other option there can be for this.

    And, yes, I'm aware of the practice where "scientists" take a new-but-identical dowsing rod and compare it to other dowsing rods they use often and declare all of them calibrated on the basis of meeting expectations. That's just performative nonsense.

    If you're not actually measuring real properties of the universe, it ain't science. That's the difference between 5C, 15C and 45C and cold, lukewarm and warm. Only one those scales is useful when doing science.
     
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