IiME conference 2018 starting to fill in agenda: J Corbyn (to be confirmed)

Lilpink said:
I'd be happier if he didn't support the CMRC....
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Andy said:
Reference for that? And I wouldn't be hugely surprised if previously perhaps he had, to someone outside the ME world, the CMRC probably do look worthwhile of support. It's part of the challenge, to educate and raise the awareness of ME with those in power so that they do change their minds.
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It's one of the links to EDMs that @MeSci found. I'm sure you're right that he wasn't aware of the background to the CMRC.

MeSci said:
I've been looking for references to Corbyn having an interest in ME, and found this from 2013: https://www.parliament.uk/edm/2013-14/212 and this one from 2005/2006: http://www.edms.org.uk/2005-06/260.htm

I think there are more but my brain isn't functioning very well!
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Here's another one he signed in 2010: http://www.parliament.uk/edm/2010-12/778 (edited as I posted the wrong link first time).

Apparently, Jeremy Corbyn has been very supportive of issues faced by constituents with ME for many years, and in the past was given a copy of the book Lost Voices from a hidden illness (which led to the film Voices from the Shadows) and the IiME Conference DVDs so his agreement to speak at the next Invest in ME Research Conference hasn't come out of the blue.
 
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Jo Best said:
It's one of the links to EDMs that @MeSci found. I'm sure you're right that he wasn't aware of the background to the CMRC.


Here's another one he signed in 2010: http://www.parliament.uk/edm/2010-12/778 (edited as I posted the wrong link first time).

Apparently, Jeremy Corbyn has been very supportive of issues face by constituents with ME for many years, and in the past was given a copy of the book Lost Voices from a hidden illness (which led to the film Voices from the Shadows) and the IiME Conference DVDs so his agreement to speak at the next Invest in ME Research Conference hasn't come out of the blue.
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Thanks. Perhaps I'm misunderstanding but all I see from those is that he supported calls for increased funding into ME. While those calls might have lead to the CMRC being formed, it hardly shows that he supports the CMRC in it's current form and level of uselessness.
 
IiME has just posted this on Facebook in response to a question asking if the chance of this actually happening can be improved
There is probably nothing more to do at the moment.
The charity has been in communication with Mr Corbyn's office for some years and with a constituent whom we have supported. He has received Dr Gibson's book [Science, Politics, …….and ME] and other IiMER material. This all goes on in the background.

The invitation has been arranged entirely by Invest in ME Research - with no reference to anyone else and with help from contacts we already have/had.
We always try to gain interest from areas which will benefit pwme and their families.
We have been told the invitation has been accepted - but that it is always subject to external events - general election, political events, etc. That is fair enough.

The best way for patients to react, if they wish, is probably just to express thanks - maybe on something like Twitter.
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For those on Twitter who want to follow that suggestion. https://twitter.com/jeremycorbyn
 
Andy said:
Thanks. Perhaps I'm misunderstanding but all I see from those is that he supported calls for increased funding into ME. While those calls might have lead to the CMRC being formed, it hardly shows that he supports the CMRC in it's current form and level of uselessness.
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EDM 212 was specifically in support of the UK CFS/ME Research Collaborative and carefully worded, e.g. think MEGA.
Also bearing in mind that IiME Research had been doing just this since 2006 and is why I'm sure CMRC formed as the next incarnation of the MRC Expert Group in collaboration with the UK Science Media Centre, otherwise why not simply join up with what IiME Research were doing.
I'm sure JC (and most, maybe all, of the other 34 signatories) was completley unaware of what was intended by the formation of the CMRC (to support the BPS lobby).
That this House welcomes the UK Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Research Collaborative; notes that estimates of the prevalence of ME/CFS range from 240,000 to 600,000 patients; further notes that research outcomes on ME/CFS have been limited and fragmented in the past; and supports the Collaborative's objectives which include promoting the need for world-class research into ME/CFS across all fields, encouraging multidisciplinary research and more researchers to participate and working collaboratively with funders, charities and researchers to increase the financial support for ME/CFS research in the UK. https://www.parliament.uk/business/...ns/edm-detail1/?edmnumber=212&session=2013-14
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Andy said:
Reference for that? And I wouldn't be hugely surprised if previously perhaps he had, to someone outside the ME world, the CMRC probably do look worthwhile of support. It's part of the challenge, to educate and raise the awareness of ME with those in power so that they do change their minds.
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It was in one of the links posted higher up the thread. https://www.parliament.uk/edm/2013-14/212

EDIT: agree he was likely unaware of the political underpinnings of the CMRC. But the ref is useful for the CMRC to claim him as one of their own... if they want to. It's slight. There I go again ..nit picking.
 

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Lilpink said:
Bizarre of VC given Norman Lamb actually said on TV (I saw it) that he was liaising with Wesser to create Lib Dem health policy during the last election.
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I always cringe when politicians talk about Lamb's great work on MH. I've never seen him move beyond just thinking that politicians should do more of what the Royal College of Psychiatrists tells them.
 
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