If an effective treatment comes along for ME/CFS, how can we physically rehabilitate ourselves?

PhysiosforME said:
others may need some specific exercises targetting different areas.
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Is it really that difficult to rehab after an extended period of inactivity? Comorbidities and age might create some needs, but other than that - wouldn’t most people get there by just using their bodies without going over the top?

Except for the extremely severe cases - which areas would someone realistically need to target that aren’t achieved by living a moderately active life?
 
Honestly my intuition has been this would be by far the easiest part. Like if I’m genuinely treated and can do more my muscle will grow as I use it. But my personality is basically always pushing myself physically (great for ME…), so maybe thats why.
 
Even if it's not common, there are people that have recovered from years of ME/CFS, probably including some pretty severe cases. So they could answer this question of how their physical rehabilitation went.

I suspect most people could just start moving around and be fine, as long as they don't go climbing a mountain on day one.
 
We’ve seen plenty of recoveries in the 1-2 year range of PVF, which can often lead to the same levels of inactivity as ME/CFS. Most of them just got on with their lives gradually. The same is seen in the step data from the dara phase 1 trial.

There’s obviously a difference between one and twenty years - but is it really that much?
 
Utsikt said:
We’ve seen plenty of recoveries in the 1-2 year range of PVF, which can often lead to the same levels of inactivity as ME/CFS. Most of them just got on with their lives gradually. The same is seen in the step data from the dara phase 1 trial.

There’s obviously a difference between one and twenty years - but is it really that much?
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Maybe there’s a case for someone who hasn’t walked in decades to do it gradually with physio supervision. But I think otherwise most ME cases would be pretty smooth.
 
Some may not feel they need it but I would welcome advice. There are parts I see being easy/natural. I’ve recovered from illness that has reduced activity significantly for many months before. But other parts I see being less easy. And advice from an expert would be useful for me whatever. I’m also now older and have some specific problems with some tendons/joints due to my time with ME/CFS so will need to know what to do to help them, if I even can.
 
Yann04 said:
Maybe there’s a case for someone who hasn’t walked in decades to do it gradually with physio supervision. But I think otherwise most ME cases would be pretty smooth.
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The extreme cases - absolutely. But I’m able to walk 50 meters a day (to the bathroom mostly), and I can’t imagine I’d need any help with getting back to normal.

The only thing I’d realistically need was some guidance on weight lifting - but I might as well ask some friends to show me the ropes.
 
Utsikt said:
The extreme cases - absolutely. But I’m able to walk 50 meters a day (to the bathroom mostly), and I can’t imagine I’d need any help with getting back to normal.

The only thing I’d realistically need was some guidance on weight lifting - but I might as well ask some friends to show me the ropes.
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Yeah I’n talking avout someone who hasn’t used their legs in 15 years like at all.
 
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