High body temperature

[Paulie]

My body seems to always get really hot around midnight, the time when I would generally like to go to sleep if I could. It feels similar to a fever during an infection and it happens every night. It always keeps prevents me sleeping and I think this is partly responsible for why I can't get to sleep until 4am - 6am. Even on a cold winter's day and I have the window open I still find I am really hot. I don't experience sweating much really, I just feel hot.

After sleeping I often feel much more normal and being in bed is comfortable - there's a clear pattern - which makes me think this is hypothalamus/out of sync circadian rhythm related. I don't get the switching between hot and cold/shivering you often get with an infection - it's always just the hotness.

Is this common in MECFS? Is there something specific causing this that I can ask my doctor about? I often read people with MECFS talking about feeling cold and needing thick duvets/weighted blankets which makes me wonder why I am the opposite.

Is there potentially something that is unrelated to MECFS going on?

Paulie

 

[Sly Saint]

Night sweats are common. Mine are usually around 4-5 am (note: not menopause).
It is also a circadian rhythm thing.
If you do a general search on 'sweats' on the forum you'll see others experiences.

 

[ukxmrv]

I burn at night. My body temperature starts low in the morning and increases in the evening.

Have to sleep with the window open and a fan on. Air con is better but cannot afford it.

Only thing that ever helped was taking Valtex (antiviral) at night.

The heat feels internal in my bones and especially my legs. No sweating.

 

[NelliePledge]

I definitely get increased neuropathic hand/foot pain at night also waking up with night sweats. I really struggle with this if we get a heatwave.

 

[Mij]

@Paulie

Have you taken your body temperature to see if it's 'high'? An M.E specialist told me 30 years ago that we feel hot b/c our temperature actually drops and it's our bodies way of trying to keep us warm.

I feel hot during PEM, but when I take my temperature it's 95.5 C.

 

[Mithriel]

Low blood sugar makes you feel warm, diabetics with really low levels can be drenched with sweat. As your levels drop the liver gets a signal to release stores to bring your blood level up to normal but there can be a delay in ME. Think about the way we have trouble heating up if we are cold.

I sometimes find myself checking to see if any heaters have been accidently switched on. I get night sweats occasionally as well but that is different as I wake up with a soaking nightie rather than feeling hot as such.

 

[Mij]

Hyperthyroidism too.

 

[Trish]

Is this common in MECFS? Is there something specific causing this that I can ask my doctor about?

If it were me I would do some record keeping of symptoms, times and actual body temperature, and ask my doctor about it.

 

[Arnie Pye]

This might be of interest.

A Tangled Threesome: Circadian Rhythm, Body Temperature Variations, and the Immune System

There are lots more papers listed on this link, and you can restrict the age of the papers returned by the search.

https://scholar.google.co.uk/schola...circadian+rhythm+body+temperature+sleep&btnG=

 

[Creekside]

What's your diet like? Eating fatty meats later in the day makes me wake up feeling like my inner furnace is going full blast.

Also, is your measured temperature higher at night, or are you just 'feeling hot'? Sometimes I feel hot/feverish when my oral temperature is actually below my normal level.

 

[AliceLily]

Same here @Paulie I ended up not wearing anything on top to bed after about 7 years into ME. I would wake up boiling hot and it feels like an intense trapped in dry heat. It's not pleasant.

In my severer years of ME I did get the night sweats often but the waking up boiling hot is still constantly there after over 25 years of ME.

 

[Ravn]

If you're going to check your temperature consider checking both core temperature and skin temperature. I get a very dry fever sensation, too, but there's usually no change in core temperature at all (mine is actually on the low side), yet skin temperature is significantly elevated. So whatever is going on, in my case it's not a classic fever. I've no idea what it is and have no solution for it except for putting a cooling towel on my face and neck - but that doesn't exactly help sleep.

I also get night sweats. Some of them I suspect are menopausal because they match my daytime hot flushes. These are very brief and come with elevated heart rate and a sudden brief drop in blood pressure. Another type I suspect is ME-related. These started years before I was aware of any other peri-menopausal symptoms, they last longer and don't have the BP/HR thing going on. Again, I've no idea what's going on or what to do about it apart from throwing off the duvet and, if really bad, change my t-shirt to a dry one.

Not much help, am I

 

[belbyr]

I get this and I personally think it is related to the high levels of norepinephrine I have from POTS. Typically when I feel my heart rate is higher than normal I also feel hot, shakey, on edge, can’t sleep, and sweaty.

Only reason I know is from getting my levels checked at Mayo Clinic.

I will also add my body temp is typically 96.5-98F