Help ME / CFS patients to be recognized by the Ministry of Health - French petition

Andy · Oct 22, 2017

Google translate version of the petition text.

In the world millions of patients suffer from the encephalomyelitis M yalgique otherwise named SFC / EM in France and ME / CFS in the Anglophone countries.

This disease of unknown origin is progressive and disabling, fibromyalgia can be associated with it , it causes permanent exhaustion that worsens after effort and is not relieved by rest, joint and muscle pain, cognitive disorders, digestive and intestinal disorders, loss of balance, memory loss, lymph nodes, sore throat, headaches, sleep disturbances, changes in heart rate, deregulation of body temperature, tinnitus , multiple allergies, hypersensitivity to light, noise, odors and many progressive symptoms. The disease is unrecognized and not taught by the medical profession while evidence of immune system dysfunction and brain changes is visible and measurable:

http://www.sfc-em.com/challenge-biologique/

Patients are confined to their homes , most of whom are bedridden in a condition that worsens over time and there is no known cure . They have lost their jobs, have no social life, are isolated in destitution and need for the most affected auxiliary life.

The medical profession and the French health authorities have not taken the measure of the severity of this syndrome and the number of patients is not listed at the national level while it explodes as in all the states of Europe and of the world. These patients are called: The invisible , they are not supported by the public health system and there is no research to find the origin and treatment to their pathology. Help us to recognize this disease in long term affection by the ministry of health so that it is taken over by the Health Insurance and that the Medicine makes research to find its origin and treatments.

It is not normal to leave so many real citizens forgotten and excluded from the nation in this situation of suffering and precariousness without a future and without treatment to relieve their extreme suffering, which sadly ends with a death.

This disease is recognized by WHO as a: Serious Neurological Disease.

Thank you .
Click to expand...

https://www.change.org/p/agnès-buzy...-a-être-reconnus-par-le-ministère-de-la-santé

Sasha · Oct 22, 2017

Je l'ai fait!

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Help ME / CFS patients to be recognized by the Ministry of Health - French petition

Andy Committee Member

Sasha Senior Member (Voting Rights)

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Help ME / CFS patients to be recognized by the Ministry of Health - French petition

Andy Committee Member

Sasha Senior Member (Voting Rights)

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