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Guardian article: A catalogue of losses: what chronic fatigue took away from my life - by Mike Mariani

Discussion in 'General ME/CFS news' started by Shadrach Loom, Nov 28, 2022.

  1. Shadrach Loom

    Shadrach Loom Senior Member (Voting Rights)

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    Moosie, Kalliope, MeSci and 18 others like this.
  2. Trish

    Trish Moderator Staff Member

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    It's a good article, telling the story of his first couple of years with ME/CFS - lots of doctors seen before diagnosis, lots of money wasted on ineffective treatments, then after a couple of years, reassessing and deciding to give up on unevidenced treatments and try to make a new life within the constraints of the disease instead of fighting it.
    It's an excerpt from his book:
     
    Moosie, Kalliope, oldtimer and 14 others like this.
  3. Shadrach Loom

    Shadrach Loom Senior Member (Voting Rights)

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    Yes, as I said in the original thread title, relatable content, although I took issue with the headline (which is never the author’s).
     
    Kalliope, RedFox, Ariel and 10 others like this.
  4. DokaGirl

    DokaGirl Senior Member (Voting Rights)

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    Excellent article.

    I noted this author followed up with physicians regarding their failed treatments.
    I think in a number of cases that's an unusual scenario.

    Perhaps we would have slightly more progress if these practitioners, of whatever stripe, were more frequently confronted with their failures.

    I say a bit more progress, as there are doubtless many practitioners who don't change, and just wait for more customers to come along.
     
    Kalliope, MeSci, Ariel and 10 others like this.
  5. Chris

    Chris Senior Member (Voting Rights)

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    Superbly written and powerful in a way that reminds me of Laura Hillenbrand’s "A sudden illness". Even skeptics would find it hard to just belittle this story or doubt its credibility (provided they carefully read it first…).
     
    Kalliope, MeSci, RedFox and 11 others like this.
  6. InitialConditions

    InitialConditions Senior Member (Voting Rights)

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    I contacted the editor and the article title has been amended to include 'syndrome'.
     
  7. DokaGirl

    DokaGirl Senior Member (Voting Rights)

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    Thank you!
     
    Kalliope, MeSci, oldtimer and 12 others like this.
  8. Andy

    Andy Committee Member

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  9. Shadrach Loom

    Shadrach Loom Senior Member (Voting Rights)

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    That’s fantastic! If you don’t mind me asking, just because it’s such impressive responsiveness, was that online form, generic email, Twitter or personal contact? (And if the latter, maybe you can get them to take down this too :)).
     
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  10. InitialConditions

    InitialConditions Senior Member (Voting Rights)

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    The address for corrections — which is the address I used — is: guardian.readers@theguardian.com

    I had to email twice because the person manning this email address misunderstood my issue with the article's title. But it was corrected after that.
     
    Kalliope, MeSci, EzzieD and 14 others like this.
  11. JemPD

    JemPD Senior Member (Voting Rights)

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    Very good
     
    Kalliope, MeSci, RedFox and 4 others like this.
  12. Sean

    Sean Senior Member (Voting Rights)

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