General thread on functional disorders in Denmark

[NelliePledge]

Seems quite likely that what @bobbler suggests applies

Rather like the whole concept of “functional” really meaning something different the responses could well be “damning with faint praise”

 

[bobbler]

I was thinking that myself, that I'd probably answer politely it's provided some useful tools to not provoke anyone.

The patient association was founded in 2017 and claimed then that 300 000 people in Denmark were suffering from functional disorders. If only 97 patients answered this survey in 2025, and only 21% among them had some improvement (which could be due to a lot of reasons), I do hope this is the beginning of the end of Per Fink's ruling.

Yes so less than 21 people

it could be a common sense assumption to think that those who found their experience was good and recovered would have the most interest in giving feedback to ensure it was there if they had future need. And because I assume they would be less 'haunted by bad memories etc.' in relation to a service itself.

So can't assume this is some tip of an iceberg in the way those who had a bad experience might have thought it better to 'say nothing' by not responding.

It is worth noting that it isn't unusual for discharge/release from certain types of places to be entirely dependent on 'performing recovered' and saying the right things. Hence the potential for a very high perceived risk issue for ticking anything other than vs the recovered/improvement/it was wonderful end of the scale.

Interestingly, I also just did a quick google and found this: https://pmc.ncbi.nlm.nih.gov/articles/PMC1464019/

Conclusions​

Findings suggest that response bias may significantly impact the results of patient satisfaction surveys, leading to overestimation of the level of satisfaction in the patient population overall.

Estimates of satisfaction may be most inflated for providers with the least satisfied patients, thereby threatening the validity of provider-level comparisons.

 

[Sean]

Damning with faint praise, indeed.

 

[rvallee]

The Patient Association for Functional Disorders (PFFL) shared some less than impressive results today on Facebook from a survey on user experiences from patients at Center for Functional Disorders.

None of the 97 respondents say they have recovered, but PFFL says that's no surprise. PFFL emphasise that most of the respondents say they have received some useful tools. Respondents also say that they can't measure effects when it comes to symptoms, but they have gotten increased insight and quality of life.

A full report is expected to be published soon.

Those are some comically blatant turd-polishing questions. About as expected, I doubt the 'report' will be any less overtly generous, but let's give them the opportunity to not be over-the-top biased.

They were saying boo-urns, they were just saying boo-urns!