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General Anesthetic and Severe M.E

Discussion in 'General ME/CFS discussion' started by Jessie 107, Sep 30, 2022.

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  1. Jessie 107

    Jessie 107 Established Member

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    18
    I have severe M.E, I am bedbound.
    I have to go to hospital for a procedure which is going to require a general anaesthetic. The procedure should only take 5 / 10 minutes.
    My question is, has anyone who is severe had a G . Anesthetic?
    How has is affected your M.E ?
    What should I tell the Anesthesiologist about my illness?
    I have mild Pots.
    No horror stories please.
     
  2. Arnie Pye

    Arnie Pye Senior Member (Voting Rights)

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    Wits_End and Peter Trewhitt like this.
  3. Sasha

    Sasha Senior Member (Voting Rights)

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    I had to have a general anaesthetic in my 30s. At that point, I too was bedbound, and, looking back, had POTS. I looked to the MEA literature for advice and passed it on to the anaesthetist (and I was fine!).

    I would expect the advice to have been updated by now. I'd get in touch with the MEA.

    Good luck! :)
     
  4. CRG

    CRG Senior Member (Voting Rights)

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    Leaflet available online, cost £1 - https://meassociation.org.uk/product/anaesthetics-your-questions-answered/

    Not personal experience but you might want to focus on Pre Anaesthesia drugs where there may be more latitude in choice/avoidance/inclusion than on the actual GA being used https://bnf.nice.org.uk/treatment-summaries/pre-medication-and-peri-operative-drugs/
     
  5. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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  6. Yvonne

    Yvonne Established Member (Voting Rights)

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    Last week I had midazolam and fentanyl for a procedure. It was not a general anaesthetic but conscious sedation and local anaesthetic. I had no problems with at all. I was weak and tired the next couple of days, but that would have been expected even without the drugs and I was completely back to normal by the third day. I am very sensitive to most drugs, even at low doses, so was surprised not to have any adverse effects.
     
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  7. obeat

    obeat Senior Member (Voting Rights)

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    632
    I had two anaesthetics last year, and I don't think that they caused any side effects. The problems in hospital are noise ,bright lights and excess activity so you need to plan for those. I wore my eye mask and earplugs while being anaesthetised and the eye mask had been replaced when I got back to recovery.

    If you suffer from migraine and have to fast, the anaesthetist would consider putting up an IV line if fasting triggers a migraine.
     
  8. SunnyK

    SunnyK Senior Member (Voting Rights)

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    California, USA
    I don't have severe ME (I'm not always bedridden), but I have had many surgeries over the years, and I do feel that with each successive surgery, my overall fatigue gets worse and/or the surgery takes longer to recover from, especially if I have general. My last surgery (shoulder replacement in March 2022) required general, and it's hard to say whether the anesthesia alone is why my overall health is worse now, as I also took an exhausting trip in June that may have contributed more to my worsened ME. I always ask before a surgery if non-general is an option (nerve blocks, while harder for recovery pain, are easier on my fatigue; spinal blocks; etc. with mild sedation are my preference), and if general is required, I talk to the anesthesiologist before the surgery and ask for the lowest possible amount of anesthetizing medication.

    Not sure if this is helpful.
     
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