Fluoroquinolones (including ciprofloxacin)

https://www.nature.com/articles/d41586-018-03267-5


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I will go to my grave knowing that I did not have ME/CFS until three days after starting on a "skookum" dose of Penicillin. That is when my ME kicked in, and within the year, allergies and Chronic Sinusitis.

 

Same here. I was having some bowel problems and a few allergies and intollerances. I then was prescribed cipro for a misdiagnosed bowel infection and that triggered my ME. It made me sick as a dog and i wanted to stop using it but the physician kept pushing me i had to finish the course or she would drop me as a patient.
I've never been the same since.
Now i have no more life. Thank you.

 

There is a support/advocacy group
https://floxiehope.com/
I too think that Fluoroquinolones may have played a part in my getting ME.

 

Welcome @Thinktank and great to see you over here. You know my story already but a neurotoxic reaction to Levaquin was the very beginning of my entire illness and the first trigger in a series of hits to my immune system. Hoping for the day that Levaquin is banned from the planet.

 

@Trish , thank you.

@Gingergrrl , nice to see you here. Yup, your story is a prime example of the damage that these fluoroquinolones can achieve.

 

I didn’t know fluoroquinolones caused psychiatric and sensory disturbances along with the physical problems. Why on earth are they still allowed to sell them.

 

Because they are an enormous money maker for Ortho-McNeil/Johnson & Johnson. They are one of the top drugs in the US (maybe worldwide, I am not sure) which shows that they are given out like candy if a drug that you take for seven days is given as frequently as a med that someone would take daily (365 days/year).

 

Not sure what kind of antibiotics were prescribed for me when I first got ill in 2006, but it was for two mycoplasma lung infections (following a strep infection, what a fun summer that was) which apparently is one of the most common uses of floxie.

 

https://www.fda.gov/Drugs/DrugSafety/ucm611032.htm

 

Levaquin is what got me out of severe cfs. Strange world.

 

The MHRA (Medicines and Healthcare products Regulatory Authority) has now issued a formal warning to health professionals and introduced new prescribing regulations.


“Disabling, long-lasting or potentially irreversible adverse reactions affecting musculoskeletal and nervous systems have been reported very rarely with fluoroquinolone antibiotics. Fluoroquinolone treatment should be discontinued at the first signs of a serious adverse reaction, including tendon pain or inflammation.”
MHRA Website Announcement – 21 March 2019

 

Finally this is happening in Germany!

Although the guidelines already restricted the use of fluorquinolones in minor infections (like sinusitis, cystitis), most docs seemed not aware of this, nor of possible severe, chronic side effects.

Today the Federal Institute for Drugs and Medical Devices published their risk assessment and a "red-hand-letter" (urgent safety information).

The red-hand-letter also requests to report adverse reactions.

 

Oral fluoroquinolones and risk of fibromyalgia ... not found

Received 22 March 2018; Revised 26 August 2018; Accepted 8 September 2018
Correspondence Mahyar Etminan, Assistant Professor of Ophthalmology and Visual Sciences, Faculty of Medicine, Department of Ophthalmology and Visual Sciences, The University of British Columbia
https://bpspubs.onlinelibrary.wiley.com/doi/pdf/10.1111/bcp.13765

 

Regarding this post I want to share my results after SIX years of stopping Ciprofloxacin
(The Polysorbate is from a drug I take daily)

 

Yes my GP ordered the test.
Why I think it's somehow reliable - if not completely exact maybe - is because it shows high amounts of Ciprofloxacin and Polysorbat 80. I added other Parameters to check if it's reliable bc they are not of concern in my case and I wanted to see of only these two come out elevated. And they did.