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Finnish Duodecim ME/CFS Guideline: Draft Published for Consultation

Discussion in 'General ME/CFS News' started by mango, Nov 10, 2020.

  1. mango

    mango Senior Member (Voting Rights)

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    Robert 1973, Snowdrop, JaneL and 11 others like this.
  2. strategist

    strategist Senior Member (Voting Rights)

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    The link is to a page for commenting on them. Where can we read these guidelines?
     
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  3. mango

    mango Senior Member (Voting Rights)

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    It says that if you fill out the form and click through, you will be able to access the material.

    ETA:
     
    Last edited: Nov 11, 2020
  4. strategist

    strategist Senior Member (Voting Rights)

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    Yes I found it. I got a copy in Finnish and Google can translate the entire document. Some of what they are recommending

    There are many more recommendations.

    Overall it seems good but as usual there is a bit of an obsession with exercise. The problem is that they recommend exercise to increase functional capacity when we know this doesn't work.

     
    Last edited by a moderator: Nov 11, 2020
  5. mango

    mango Senior Member (Voting Rights)

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    Ooh, brilliant! Thank you so much :)
     
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  6. mango

    mango Senior Member (Voting Rights)

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  7. Esther12

    Esther12 Senior Member (Voting Rights)

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    Might the new NICE draft be useful for helping push for improvements? Best of luck to everyone working on that.
     
  8. JemPD

    JemPD Senior Member (Voting Rights)

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    Thinking of you all hoping the bits that unhelpful can be improved, gosh there's a lot going on at the moment!
     
  9. Michiel Tack

    Michiel Tack Senior Member (Voting Rights)

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    Duodecim publishes evidence-based medical guidelines that are taken over by other countries (for example here in Belgium). I have sent a mail asking if this will also be the case for these ME/CFS recommendations or whether they are intended for Finland only.
     
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  10. mango

    mango Senior Member (Voting Rights)

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    The new guideline has now been published:

    https://www.terveysportti.fi/apps/ltk/article/hsu00019?toc=476592



    http://www.europeanmealliance.org/news-Q12021-002.shtml
     
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  11. Snowdrop

    Snowdrop Senior Member (Voting Rights)

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    Now if only Canada and others would step up and do the same. One could start calling it a trend.
     
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  12. dave30th

    dave30th Senior Member (Voting Rights)

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    is there an english-language version? Are they improved from the earlier version?
     
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  13. mango

    mango Senior Member (Voting Rights)

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    I haven't been able to find an english-language version (yet).

    By earlier version, do you mean the draft? This is the first published version, I believe it's Duodecim's first ever guidelines for ME/CFS.
     
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  14. mango

    mango Senior Member (Voting Rights)

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  15. Kalliope

    Kalliope Senior Member (Voting Rights)

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    Thank you for providing these links, @mango !

    It doesn't sound like they're quite there yet. Here are some quotes from the google translated article from the Finnish Medical Journal:
     
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  16. mango

    mango Senior Member (Voting Rights)

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  17. Kalliope

    Kalliope Senior Member (Voting Rights)

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  18. mango

    mango Senior Member (Voting Rights)

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  19. Esther12

    Esther12 Senior Member (Voting Rights)

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    So there is no evidence based treatment, but they know how to treat it? This is a mentality that worries me.
     
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