Finding my way out of the fog by Jess Davis

Great article by a Long Covid sufferer discussing Long Covid, ME/CFS and POTS on the Australian ABC news site.

 

https://twitter.com/user/status/1604601392236486656


Interviews David Putrino with plenty of input from Emerge and the Australian POTS Foundation.

She does try to cover the appalling way people with ME/CFS have been treated and briefly mentions the highly problematic Queensland Health Submission to the LC Senate Inquiry.

 

Oops, forgot the link! Thanks Sean.

 

Yup, one of the most honest ones so far. It really tells the story of a profession so dysfunctional it clearly can't be trusted to fix its own failures, a flaw cannot fix itself using what makes it flawed in the first place. So the question remains of who will fix this, while the flaw is in control of the situation, able to block anyone from doing anything about it, which locks the failure in place.

It all boils down to lack of data. The refusal to diagnose, to count. The mere saying that "everyone recovers" while no one even records this data and the people being failed are failed precisely in a way that makes them not counted. The lack of data is deliberate and only serves to justify the lie that it's all mysterious, when really it's blatant refusal to do the work.

But the lack of blaming medicine for being at fault is an ongoing failure. It's clear who is at fault here, but no one in charge has the courage to do what's right. The inability to put blame where it belongs explains everything about why this failure has been ongoing for centuries, even through the scientific revolution in medicine.