Fatigue Scales in research

[Lapis108]

Hi All,
It's be really interested in what people's thoughts are for the most accurate fatigue scales that can be used in research studies?
Ones that also give representation to PEM over time.
The CFQ (chalder fatigue scale/ questionnaire) is often used but has serious limitations.
The DePaul Questionnaire does seem to be more accurate for PEM.
Thanks in advance for ideas and suggestions

 

[Sly Saint]

if you click on the different tags for this thread you will find many threads discussing various measurement scales including the ones you mention.

 

[ME/CFS Skeptic]

Think it depends on what you want to do with it.

 

[Andy]

Hi Lapis, welcome.

It's be really interested in what people's thoughts are for the most accurate fatigue scales that can be used in research studies?

Well, the first question would be what is wanted to be measured? As far as I can recall, we have never tried to compare the various scales that exist but if the desire is to measure the level of reduced functioning, or otherwise, in pwME then my expectation would be that they would all be lacking to one extent or another.

Ones that also give representation to PEM over time.

To my knowledge there is no scale that does this.

The CFQ (chalder fatigue scale/ questionnaire) is often used but has serious limitations.

Issues with the CFQ are laid out here, S4ME: Submission to the public review on common data elements for ME/CFS: Problems with the Chalder Fatigue Questionnaire

The DePaul Questionnaire does seem to be more accurate for PEM.

And here are a couple of discussion threads that discuss the DSQ.
The Development of the DePaul Symptom Questionnaire: Original, Expanded, Brief, and Pediatric Versions, 2018, Jason
The DePaul Symptom Questionnaire-2: a validation study, 2019, Sunnquist et al

Hope that is of some use.

 

[Lapis108]

Hi Lapis, welcome.


Well, the first question would be what is wanted to be measured? As far as I can recall, we have never tried to compare the various scales that exist but if the desire is to measure the level of reduced functioning, or otherwise, in pwME then my expectation would be that they would all be lacking to one extent or another.


To my knowledge there is no scale that does this.


Issues with the CFQ are laid out here, S4ME: Submission to the public review on common data elements for ME/CFS: Problems with the Chalder Fatigue Questionnaire


And here are a couple of discussion threads that discuss the DSQ.
The Development of the DePaul Symptom Questionnaire: Original, Expanded, Brief, and Pediatric Versions, 2018, Jason
The DePaul Symptom Questionnaire-2: a validation study, 2019, Sunnquist et al

Hope that is of some use.

Thank you - I will look through these threads

 

[Medfeb]

Issues with the CFQ are laid out here, S4ME: Submission to the public review on common data elements for ME/CFS: Problems with the Chalder Fatigue Questionnaire

I am looking for articles discussing the use of the Chalder instrument. I've found this public comment submission on Chalder to NIH's ME/CFS CDE initiative. But I thought I remembered a publication on it as well. If so, does anyone have a link to that? Or am I misremembering that?