Jenny TipsforME
Senior Member (Voting Rights)
A friend of mine who has MS recently posted a video of her walking well with an exoskeleton. This seems to be something some people with MS and Parkinson’s are exploring, but I’m not seeing ME chatter about it.
Pic from website
This is the main one I’ve seen and the one she has https://uk.hypershell.tech/pages/hypershell-x-exoskeleton . I looked a few years ago at exoskeletons but they were bulky and very expensive, the price and weight seems to be going in the right direction.
It reduces the muscle effort required for walking. This seems like it could be a significant boost for mild folk, for me personally I think I might already be too severe and complex. For example, it might be more awkward than helpful in a POTS faint and you have to be able to initiate starting to walk.
It’s an interesting one to do with Pacing. Has anyone had experience navigating this? In theory it would be possible to increase activity without using more ATP but I don’t know how you’d measure staying within limits, you wouldn’t want to risk trial and error with ME. Perhaps heart rate is a good indication or time upright?
There’s a facebook group if you want to ask people who’ve actually used one: https://m.facebook.com/groups/1518640288838184/?ref=share
( this thread discusses a relevant paper to do with fatiguability and exoskeletons but that’s a passive exoskeleton, this one contains a battery and motor to actively assist moving your legs).
https://m.facebook.com/groups/

Pic from website
This is the main one I’ve seen and the one she has https://uk.hypershell.tech/pages/hypershell-x-exoskeleton . I looked a few years ago at exoskeletons but they were bulky and very expensive, the price and weight seems to be going in the right direction.
It reduces the muscle effort required for walking. This seems like it could be a significant boost for mild folk, for me personally I think I might already be too severe and complex. For example, it might be more awkward than helpful in a POTS faint and you have to be able to initiate starting to walk.
It’s an interesting one to do with Pacing. Has anyone had experience navigating this? In theory it would be possible to increase activity without using more ATP but I don’t know how you’d measure staying within limits, you wouldn’t want to risk trial and error with ME. Perhaps heart rate is a good indication or time upright?
There’s a facebook group if you want to ask people who’ve actually used one: https://m.facebook.com/groups/1518640288838184/?ref=share
( this thread discusses a relevant paper to do with fatiguability and exoskeletons but that’s a passive exoskeleton, this one contains a battery and motor to actively assist moving your legs).
https://m.facebook.com/groups/
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