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Evidence Week - Sense About Science

Discussion in 'Health News and Research unrelated to ME/CFS' started by Andy, Jun 18, 2018.

  1. Andy

    Andy Committee Member (& Outreach when energy allows)

    Messages:
    14,065
    Location:
    Hampshire, UK
    http://senseaboutscience.org/activities/evidence-week-programme/

    Am I right in thinking that Sense About Science, in the UK, are blind to the flaws of the PACE trial?
     
    TiredSam, janice, alktipping and 14 others like this.
  2. Invisible Woman

    Invisible Woman Senior Member (Voting Rights)

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    10,127
    I think you are. The American Sense About Science took a different view, if I'm remembering correctly. The UK SAS were pro PACE.
     
    janice, alktipping, MEMarge and 9 others like this.
  3. NelliePledge

    NelliePledge Moderator Staff Member

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    8,549
    Location:
    UK West Midlands
    Carol Monaghan is on the House of Commons Science committee it is where she first mentioned PACE
     
    alktipping, MEMarge, Skycloud and 8 others like this.
  4. ScottTriGuy

    ScottTriGuy Senior Member (Voting Rights)

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    Maybe Evidence Week should also have a theme of "Evidence Weak" to highlight PACE and its ilk.
     
  5. Esther12

    Esther12 Senior Member (Voting Rights)

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    Anyone live nearby and fancy raising PACE concerns in front of some MPs?
     
  6. FreeSarah

    FreeSarah Senior Member (Voting Rights)

    Messages:
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    Location:
    UK -ish
    Yep, see https://johnthejack.com/2016/10/17/sense-about-science-the-pace-trial-and-me/

    Sense about Science UK grew out of the ex-Living Marxism lot with a nice track record of climate change 'skepticism' and strong, sometimes familial, links to the SMC, Institute of Ideas, Frank Furedi etc etc. There's a real 'old boys' network' there involving that strange and influential group of former revolutionary communists turned libertarians, sometimes described as "media-friendly Tory extremists." Some serious questions to be asked about SAS' funding, too.

    It's a quagmire of interconnections and interest groups with a whiff of something noxious about it. This page gives a glimpst: https://www.gmwatch.org/en/news/archive/2009/10732-george-monbiot-article-about-sense-about-science
     
  7. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    David and I will be in town that week. But it looks as if it would be quite hard for members of the public to get involved (it seems you have to ask your MP to take you). Moreover, this looks like an orgy of lowest common denominator propaganda. I doubt there would be any point in going along and saying they are the problem rather than the solution.
     
    janice, alktipping, ukxmrv and 7 others like this.
  8. Sarah

    Sarah Senior Member (Voting Rights)

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    I believe Simon Wessely previously served on the SAS advisory board. He was awarded the John Maddox Prize in 2012..

    ".. for his ambition and courage in the field of ME (chronic fatigue syndrome) and Gulf War syndrome, and the way he has dealt bravely with intimidation and harassment when speaking about his work and that of colleagues
    ."

    http://senseaboutscience.org/activities/2012-john-maddox-prize/
     
  9. NelliePledge

    NelliePledge Moderator Staff Member

    Messages:
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    Location:
    UK West Midlands
    I bet Carol M would invite you
     
  10. MEMarge

    MEMarge Senior Member (Voting Rights)

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    Location:
    UK
    Lynda Ware, from Cochrane is doing a talk: Mon 25 June
    "Making informed decisions about health care 3-4pm, Room S, Portcullis House, Cochrane Fellow Dr Lynda Ware is speaking about using research evidence to help make informed decisions about health care including systematic reviews – the backbone of Cochrane’s work. She will look behind some newspaper headlines and point to where reliable evidence-based medical advice may be found. Please RSVP to Katie.abbotts@cochrane.nhs.uk"

    http://www.evidentlycochrane.net/author/lynda-ware/

    Her blog about a talk on EBM to lay people. She is described as a retired GP, so quite possibly from the same era as Wesseley and Co.

    http://www.evidentlycochrane.net/evidence-based-medicine-spreading-word/
     
  11. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    With people like this talking I doubt there is any point in going near this. The woman is mostly interested in Women's Institute teas and I cannot see anything to be gained by pointing out to her that Cochrane is an unaccountable collection of amateurs.
     
  12. Skycloud

    Skycloud Senior Member (Voting Rights)

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    2,073
    Location:
    UK
    Might it be worth pointing out so that others in the room hear?
     
  13. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    I think not. Intelligent people, if there are any there, will see this lady is a clot so not need for me to say anything. Unintelligent people will consider any intervention criticising the nice lady as vexatious. And the person sitting next to them will roll their eyes and whisper - Oh it's that ME lot, they are always trouble.
     
  14. TiredSam

    TiredSam Moderator Staff Member

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    Location:
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    Might be worth going for the WI-quality cake then, and the free calendar.
     

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