Andy
Retired committee member
"On June 19, 2024, the Multiple Sclerosis Community Advisory Board (MS CAB) met with the EBV-MS project research team for a pivotal consultation. The objective of this meeting was to ensure meaningful engagement and involvement of expert patients in the ongoing EBV-MS clinical trials, specifically focusing on the design of Phase 2b in a patient-centric manner.
Facilitated by Rob Camp from EUPATI Spain and Patricia Moghames and Mohsharif Nasrulloeva from the European Multiple Sclerosis Platform (EMSP), the meeting brought together MS CAB members with the EBV-MS researchers Professor Gro Owren Nygaard and Professor Øivind Fredvik Grytten Torkildsen. The discussion centred around evaluating the risks and benefits of trial participation, addressing crucial patient information needs, and fostering a collaborative environment to enhance the trial’s design and implementation."
https://emsp.org/news/engaging-expert-patients-on-ebv-ms-clinical-trial-design/
Facilitated by Rob Camp from EUPATI Spain and Patricia Moghames and Mohsharif Nasrulloeva from the European Multiple Sclerosis Platform (EMSP), the meeting brought together MS CAB members with the EBV-MS researchers Professor Gro Owren Nygaard and Professor Øivind Fredvik Grytten Torkildsen. The discussion centred around evaluating the risks and benefits of trial participation, addressing crucial patient information needs, and fostering a collaborative environment to enhance the trial’s design and implementation."
https://emsp.org/news/engaging-expert-patients-on-ebv-ms-clinical-trial-design/
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