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Endometriosis and ME/CFS

Discussion in 'Other specific illnesses' started by Hutan, Mar 31, 2023.

  1. ukxmrv

    ukxmrv Senior Member (Voting Rights)

    Messages:
    830
    I wonder how many women with Endometriosis and ME are suffering at home and don't know that they have it. There are the obstacles of getting a doctor to listen and agree to do a referral and then being well enough to go and have some tests. It too a MRI scan to dx mine and that was after 20 years. My niece has been diagnosed with Endo now and her parents went the private route.
     
    Chezboo, DokaGirl, Hutan and 6 others like this.
  2. Leila

    Leila Senior Member (Voting Rights)

    Messages:
    1,157
    It's a shame. It's really not rocket science to think of endometriosis when you have excruciating period pain and other cyclic symptoms :(

    I got my diagnosis after googling for 2minutes and yet it took 4 years to have it formally confirmed.
     
    Wits_End, Amw66, DokaGirl and 3 others like this.
  3. DokaGirl

    DokaGirl Senior Member (Voting Rights)

    Messages:
    3,620
    I had a similar experience with diagnosis of rosacea. Although it was a person without medical training who told me it was rosacea. I had seen my doctor about something else. The spots were there plain as day, but no comment or dx was forthcoming.
     
    obeat, Leila, Trish and 2 others like this.
  4. Hutan

    Hutan Moderator Staff Member

    Messages:
    25,749
    Location:
    Aotearoa New Zealand
  5. SNT Gatchaman

    SNT Gatchaman Senior Member (Voting Rights)

    Messages:
    3,339
    Location:
    Aotearoa New Zealand
    Female reproductive health impacts of Long COVID and associated illnesses including ME/CFS, POTS, and connective tissue disorders: a literature review (2023)

    Also referencing —
    Gynecologic disorders and menstrual cycle lightheadedness in postural tachycardia syndrome (2012, PubMedCentral)
    High rates of autoimmune and endocrine disorders, fibromyalgia, chronic fatigue syndrome and atopic diseases among women with endometriosis: a survey analysis (2002)

    2012 reference said —

     
    RedFox, Trish and Peter Trewhitt like this.
  6. SNT Gatchaman

    SNT Gatchaman Senior Member (Voting Rights)

    Messages:
    3,339
    Location:
    Aotearoa New Zealand
    Some refs in relation to theories around endometriosis and potential mechanistic overlaps with other diseases.

    Endometriosis in females without a uterus —
    Clinical Features and Management of Endometriosis among Patients with MRKH and Functional Uterine Remnants (2021)
    Endometriosis in a Patient with Mayer-Rokitansky-Küster-Hauser Syndrome and Complete Uterine Agenesis: Evidence to Support the Theory of Coelomic Metaplasia (2010)

    (Rare endometriosis in males) —
    Endometriosis in a Man as a Rare Source of Abdominal Pain: A Case Report and Review of the Literature (2018, Case Reports in Obstetrics and Gynecology)
    An unusual cause of abdominal pain in a male patient: Endometriosis (2021, Avicenna Journal of Medicine)

    Recent work on cell signalling genetic and epigenetic processes, including microRNAs —
    The Role of Long Non-Coding RNAs in Endometriosis (2021, International Journal of Molecular Sciences)
    The Pathogenesis of Endometriosis: Molecular and Cell Biology Insights (2019, International Journal of Molecular Sciences)
     
    Hutan, Trish and Peter Trewhitt like this.

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