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Enabling personal recovery from [FM] – theoretical rationale, content and meaning of a person-centred, recovery-oriented programme, 2021, Mengshoel

Discussion in 'Fibromyalgia and Connective Tissue Disorders' started by Andy, Apr 16, 2021.

  1. Andy

    Andy Committee Member (& Outreach when energy allows)

    Messages:
    14,739
    Location:
    Hampshire, UK
    Abstract
    Background
    Fibromyalgia (FM) is a contested, chronic widespread pain syndrome on which recommended therapies have short-lasting, moderate effects. Nevertheless, some patients become symptom-free, and their recovery experiences inspired us to develop a patient-centred recovery-oriented programme (PROP) delivered in a group format. Presently, we describe the theoretical rationale, purpose and content of the PROP, and its meanings for clinicians and patients.

    Methods
    A multidisciplinary clinical team, a leader of a rehabilitation unit, and two researchers coproduced the PROP. Five full-day seminars were arranged to bridge research and clinical experiences. Qualitative studies about patients’ illness and recovery experiences and questions by researchers facilitated reflections on clinical experiences. The meaning of the PROP was examined using focus group and individual interviews with patients and clinicians immediately after completing the course and after 1–1.5 years.

    Results
    The biopsychosocial model displays the research evidence across biological, mental and social impacts of FM, justifying that life stress can be an illness-maintaining factor in FM. The content addresses enabling patients to heal their own life and self by modifying life stress. Patients engage in making sense of the relationship between FM, themselves, and life through exploring, discovering and creating appropriate solutions for their daily social life. The PROP reduced uncertainties and brought a positive attitude and hope to the groups. After 1 year, patients are still engaged in recovery work, experience more good days, and maintain hope for further recovery. By sharing and reflecting on clinical experiences, a unified clinical team was established that continues to develop their competency.

    Conclusion
    To our knowledge, the PROP is the first programme for patients with FM that results from a process of coproducing knowledge, is based on explicit theoretical rationale, and facilitates a personal experiential recovery process. PROP is found to be meaningful and to work by patients and clinicians.

    Open access, https://bmchealthservres.biomedcentral.com/articles/10.1186/s12913-021-06295-6
     
    Hutan, oldtimer, shak8 and 1 other person like this.
  2. rvallee

    rvallee Senior Member (Voting Rights)

    Messages:
    7,632
    Location:
    Canada
    The intersection of medicine and psychology has been awful, but it can definitely be made worse with the addition of MBAs applying shady businessspeak.

    Just imagine alternative medicine practitioners making this argument and expecting to be taken seriously:
    And yet this is taken seriously. How? What the fluff happened for something this ridiculous to be "serious" work in the 21st damn century?
     
    geminiqry, Milo, shak8 and 6 others like this.
  3. shak8

    shak8 Senior Member (Voting Rights)

    Messages:
    1,180
    Location:
    Northen California
    And exactly what percentage of people diagnosed with fibromyalgia 'recover'?

    This article irks me in its BPS underpinning beliefs. Authors would have an outstanding second career in brainwashing.

    Ok, maybe too harsh. A second career in grandstanding. People with fibro already do whatever is it the researchers propose, it's the natural course of adjustment, and the researchers have seen the light!
     
    rvallee, NelliePledge, Wyva and 2 others like this.

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