Earseeds, Acuseeds

Daily Mail article from today

https://www.dailymail.co.uk/health/...ake-oil-ear-seeds-Kate-Moss-Cherie-Blair.html

Dr Alistair Miller is interviewed


So what can people with ME do to recover?
Cognitive behavioural therapy, also known as CBT, a type of psychotherapy, can help. The benefit is indirect, helping patients cope better with some of the symptoms. Painkillers like paracetamol or ibuprofen can improve discomfort. Sufferers are also encouraged to monitor their daily activities so they can work out the best way to use the energy they do have.

Some people with ME find that exercising helps with their symptoms, although too much can trigger what is known as post-exertional malaise – where mental or physical strain can make people’s symptoms worse.

Dr Miller says: ‘There’s no doubt the best approach is for people to push themselves a bit, but not too hard. It’s a compromise. What people need to do is exercise a bit but not to extremes.’
 
John Mac said:
Daily Mail article from today

https://www.dailymail.co.uk/health/...ake-oil-ear-seeds-Kate-Moss-Cherie-Blair.html

Dr Alistair Miller is interviewed


So what can people with ME do to recover?
Cognitive behavioural therapy, also known as CBT, a type of psychotherapy, can help. The benefit is indirect, helping patients cope better with some of the symptoms. Painkillers like paracetamol or ibuprofen can improve discomfort. Sufferers are also encouraged to monitor their daily activities so they can work out the best way to use the energy they do have.

Some people with ME find that exercising helps with their symptoms, although too much can trigger what is known as post-exertional malaise – where mental or physical strain can make people’s symptoms worse.

Dr Miller says: ‘There’s no doubt the best approach is for people to push themselves a bit, but not too hard. It’s a compromise. What people need to do is exercise a bit but not to extremes.’
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Dr Miller is desperately trying to still push exercise and CBT, whilst not contradicting the new NICE guidelines. It is unfortunate that the guidelines were dilute enough to allow the GET/CBT believers to continue in place with only minimal mental gymnastics.
 
Lou B Lou said:
Dr Alastair Miller is Medical Advisor to the Sussex ME/CFS Society - sabotaging ME patients since the 1980s
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One of the many Medical Advisors to this local group. It has more medical advisors than any of the national ME groups. I have not done the arithmetic but I suspect as many advisors as all the national groups added together. One wonders how many of the BPS researchers in the past that have cited support of patient groups for their research are referencing this group, that declines to disclose the size of its membership.
 
Adam pwme said:
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Great news. It is truly heartening to have seen the wide spread support for the patient view point and largely accurate reporting in all the main UK newspapers rather than just publications like the Canary which has regularly reported accurately on ME issues.

All though it often feels like with ME in the media it is one step forward two steps [back], this last week has felt like real progress.

[edit - corrected wrong word choice]
 
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Latest from the BBC - 8.30 ish pm 25th January 2024

The BBC *still* defending the Dragons Den Acu seeds program, and calling ME charities, ME sufferers, ME advocates and ME Doctors "Campaigners". It's a disgraceful, inexcusable, lily livered article.



'Dragons' Den: BBC defends show after ME criticism of Acu Seeds'

https://www.bbc.co.uk/news/entertainment-arts-68097756
 
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The BBC said products being featured on the programme should not be seen as an endorsement of them.
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You gotta love when they add this meaningless but on a... (OK imagine the rest is in all caps)... tv show that is literally about endorsing products by investing in them!

I mean for sure they don't endorse the product if they all decline, but this episode made the headline by all the investors on the show... endorsing the product. Which is the literal and entire concept of the show.

Words and their meaning, it's all so complicated.

And yeah they are definitely remorselessly standing by it, with some lazily-copied bits from misleading NHS sites, and the usual lies about "managing symptoms". Ah well. They chose to suck, then when given the opportunity to do better, they decided to suck again.
 
Lou B Lou said:
Latest from the BBC - 8.30 ish pm 25th January 2024

The BBC *still* defending the Dragons Den Acu seeds program, and calling ME charities, ME sufferers, ME advocates and ME Doctors "Campaigners". It's a disgraceful, inexcusable, lily livered article.



'Dragons' Den: BBC defends show after ME criticism of Acu Seeds'

https://www.bbc.co.uk/news/entertainment-arts-68097756
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Agree latest BBC article is poor. Description of ME pathetic. NHS website on ME still bad.

“ME is a long-term condition with a wide range of symptoms including extreme tiredness, sleep issues and concentration problems, according to the NHS website.”
https://www.bbc.co.uk/news/entertainment-arts-68097756

Feels like the BPS lot may have got their contacts to write new media articles undermining ME.
 
Dr Alistair Miller is interviewed


So what can people with ME do to recover?
Cognitive behavioural therapy, also known as CBT, a type of psychotherapy, can help. The benefit is indirect, helping patients cope better with some of the symptoms. Painkillers like paracetamol or ibuprofen can improve discomfort. Sufferers are also encouraged to monitor their daily activities so they can work out the best way to use the energy they do have.

Some people with ME find that exercising helps with their symptoms, although too much can trigger what is known as post-exertional malaise – where mental or physical strain can make people’s symptoms worse.

Dr Miller says: ‘There’s no doubt the best approach is for people to push themselves a bit, but not too hard. It’s a compromise. What people need to do is exercise a bit but not to extremes.’
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Piss off, 'doctor'. You have dined out on our suffering for far too long. Go find an honest job.

Adam pwme said:
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Some things should be cancelled, like this garbage.
 
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Paragraph in a diary column by Martin Samuel in Times today.

From
https://www.thetimes.co.uk/article/this-phobia-made-me-eye-roll-but-now-i-see-the-light-qjxrg9fh6

Seeds of doubt

Maybe with today’s understanding, more could be done for sufferers of myalgic encephalomyelitis. ME, as you may know it. Yuppie flu, if you’re from a certain crueller age. It’s back in the news because Giselle Boxer went on Dragon’s Den with some ear seeds and a back story about a cure and became the first contestant to get offers from all six entrepreneurs.

This provoked the ME Association to contact programme makers over unfounded claims offering false hope. Snake oil, read one headline. The history of ME treatment is full of quackery. Nobody would be allowed near a television camera with a set of magic beans and a promise they cured long Covid. Yet ME and long Covid have many similar traits and symptoms. Both are triggered by infection, and have a direct impact on energy levels and functional impairment. Indeed, when long Covid was first identified, a lot of ME sufferers were secretly upbeat because they felt research into their disease would be of use and, having been ignored and disparaged for so long, they would be dragged along in long Covid’s slipstream. It hasn’t worked out like that. Last week, an ME Association newsletter expressed dismay that “it has taken over three years for many of the researchers involved in long Covid research to accept that overlaps occur.” They don’t seem to be banking as heavily on ear seeds or the endorsement of Gary Neville, either.
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Action for ME's Medical Advisor Dr Strain in the latest Mail article:

'Professor Strain says that, if caught very early, ME patients have a better chance of recovery from making simple lifestyle changes such as improving diet and exercise.'

https://www.dailymail.co.uk/health/...ake-oil-ear-seeds-Kate-Moss-Cherie-Blair.html



What is he doing for goodness sake! If Dr Strain was misquoted then Action for ME must insist the Mail changes the text. If that quote is for real then what are AFME doing with a medical advisor who contradicts NICE and recommends diet and *exercise* with No evidence?

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