To skip out of the weeds of the detail with this one, I'm going to randomly say what I would like to see happen.
I would like for the producers involved at the BBC to be
required to meet with groups representing those who are most severe and to spend at least a day's worth of experiential time getting up close to how awful the condition actually can be at that level. My feeling is that those who allowed this must have a fundamental assumption the BPS nonsense is somewhat correct and playing with the condition as if it is just an augmented version of the 'wellness' and 'feeling a bit sub-par' for norms stuff is acceptable. I want them to see how unacceptable they are being.
And I'm surprised at the other dragons. I've watched for years so got a sense of them and their ethics, and like Neville from what I've seen of him elsewhere. I don't know Bartlett because I haven't watched DD recently.
I would like to see the other dragons meet with Action for ME and get an insight from the groups representing the more severe into how brutal an illness it is too.
And ask them all to read the Workwell information and meet
@PhysiosforME so that they understand the connection of how people get worsened etc and how those who might 'seem OK' for a short time in front of them are still part of that spectrum and when they are ill are very ill, and are debilitated in a way that is hard to accommodate without eg being one of the more fortunate who gets it acutely at a point where they can rest completely for significant time like a year + (most can't because their supporters don't understand and couldn't make that without stress) and recover - I don't know how many they are.
These two interacting aspects of how much it has been deliberately minimised and trampled to be hidden and the horror we have to live under vs how the spectrum 'works' so that when people have been misled they can see how the troped rhetoric misleads them into thinking someone can't have been that ill if they put themselves through hell holding down a job - well that would be a start.
They should already be then aware of the misinformation they might have believed and how if they imagine those with the illnes they have now had accurately described are talked about in the way the rumours have been established it would be akin to bullying for many of them as they scrabble trying to literally survive.
I'd then like to see what response those individuals who were producers or whatever part of the 'group effect'
individually would like to then write or say as a reply, hopefully a grown-up one, afterwards.
I seem to remember a really good moment on the Wright Stuff a few years back when it was still on and Matthew Wright saying how serious the condition was and he'd had people seriously ill with it in the studio, as well as those who couldn't that he'd met and you can't help but wonder whether for these others 'having to face it' might stop people playing at it as if we are some sort of half-illness that games can be played with.
Just because some phoneys in the psychosomatic medical profession and allieds wanted to sell their wares doesn't mean we are an illness that really overlaps with the 'wellness-thing' - which I think is how a lot of the *insert name about those who live and work in certain places* like to frame the condition to pretend their behaviour is acceptable and polite rather than childish and bigoted to a very serious condition the sufferers of whom have been made incredibly vulnerable by very bad behaviour and encouragement of bad behaviour towards us by certain individuals.
I'd just like to see a stop, let's have a wake-up call and see the real problem here moment. Let's ask for this to be an education opportuntiy - but one led by real patients for once, and not the unkind, callous 'experts' who in the past got to talk over our voices.
We can't have this getting carried away bully-whilst-pretend-we-aren't-bullying nonsense from (and I know the type because I know people who work in these roles so know how deluded and carried away and switched-off to hear on the detail some are the 'yes I know' when you try to tell them) supposedly enthusiastic pretending they've good intentions people 'because we are a great topic that works for them' (in the framing they inaccurately think of the condition). It all just feels so outdated, so like they'd be cringing even if it was from the 1990s behaviour like this for any other illness type disability approach. And yet I suspect they still don't get why 'because she seems happy'. So it's education and penny-drop that is what's needed. From people who are too carried away
thinking they
know it all so not hearing, and I don't know when that awful look in the mirror moment will come for that segment.
And then maybe if these characters still want to carry on the way they do, they wouldn't have the support or 'others staying quiet and letting them' of the 'polite masses' and it's then up to them whether they find that its still a profitable thing for them to do or they might want to do it in a different way/change their angle.
