Mij
Senior Member (Voting Rights)
As another member wrote, I have limited cognitive and physical energy and I will contribute blood samples, scans, biopsies et towards research.
Andy's experience is different from mine. My PEM experience was non-existent during the first 7 years of illness. My illness has changed in the last decades, but delayed PEM remains the same distinctive onset, symptoms and recovery period depending on how much I exceed my limit. I haven't had delayed PEM in years because I pace/rest. I've figured out my own personal limits.
Perhaps JL will explain how this questionnaire will "contribute to research' and improve our knowledge regarding delayed PEM?
Andy's experience is different from mine. My PEM experience was non-existent during the first 7 years of illness. My illness has changed in the last decades, but delayed PEM remains the same distinctive onset, symptoms and recovery period depending on how much I exceed my limit. I haven't had delayed PEM in years because I pace/rest. I've figured out my own personal limits.
Perhaps JL will explain how this questionnaire will "contribute to research' and improve our knowledge regarding delayed PEM?