1. Sign our petition calling on Cochrane to withdraw their review of Exercise Therapy for CFS here.
    Dismiss Notice
  2. Guest, the 'News in Brief' for the week beginning 18th March 2024 is here.
    Dismiss Notice
  3. Welcome! To read the Core Purpose and Values of our forum, click here.
    Dismiss Notice

Donation to Tuller/research as respond to our critics

Discussion in 'Advocacy Projects and Campaigns' started by Kalliope, Apr 9, 2018.

Tags:
?

Which slogan/hashtag do you prefer used on social media when donating to ME as response in debates?

Poll closed Apr 21, 2018.
  1. #RealScience4pwME

    4 vote(s)
    18.2%
  2. #donate4MEscience

    2 vote(s)
    9.1%
  3. #MEScience

    2 vote(s)
    9.1%
  4. #GoFundMEScience

    0 vote(s)
    0.0%
  5. #IDonatedToMEScience

    2 vote(s)
    9.1%
  6. #Justice4ME

    7 vote(s)
    31.8%
  7. #JustScience4ME

    2 vote(s)
    9.1%
  8. #RealScientistsRealScience

    0 vote(s)
    0.0%
  9. #ScienceNotScientism

    0 vote(s)
    0.0%
  10. #CanYouSeeMENow

    3 vote(s)
    13.6%
  1. andypants

    andypants Senior Member (Voting Rights)

    Messages:
    1,334
    Location:
    Norway
    I think, in the world of hashtags and social media, that it’s more important to be easy to remember and spell than to be grammatically correct.

    That is, you sometimes have to cheat a little to get a hashtag that is both understandable and easy. So #Justice4ME might technically point to justice for the disease (which I think is fine, justice would be for it to be studied as much as comparable conditions), but most people would easily see this as shorthand for “justice for people who are suffering from ME”.

    My point is that easy to remember and easy to spell is probably more important than it being 100% accurate.
     
    Barry, MEMarge, Jan and 7 others like this.
  2. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    9,574
    Location:
    UK
    This is the hashtag that #MillionsMissing are using this year: #CanYouSeeMEnow

    The ME community often use 'ME' as 'me'.
     
    Last edited: Apr 11, 2018
    MEMarge, dangermouse, ahimsa and 6 others like this.
  3. Kalliope

    Kalliope Senior Member (Voting Rights)

    Messages:
    6,239
    Location:
    Norway
    Here are the suggestions so far for a hashtag/slogan to use when replying to the biopsychosocio-crowd with a donation to the ME-cause. Thank you for all the ideas and contributions!

    Any other suggestions anyone?

    #RealScience4pwME
    #ExploreMEScience
    #RealSCIENCEforME
    #donate4MEScience
    #biosci4ME
    #ActualScience
    #MEScience
    #4MEScience
    #GoFundMEScience
    #MEScienceWorks
    #MyalgicEncephaloAccuracy
    #IDonatedToMEScience
    #Justice4ME
    #JusticeForME
    #JustScience
    #JustScience4ME
    #Justice4MEpatients
    #RealScientistsRealScience
    #ScienceNotScientism
    #Justice4pwME
     
    MEMarge, Alvin, dangermouse and 4 others like this.
  4. andypants

    andypants Senior Member (Voting Rights)

    Messages:
    1,334
    Location:
    Norway
    Maybe pooling our efforts and use #CanYouSeeMEnow could be a good idea.
     
  5. Keela Too

    Keela Too Senior Member (Voting Rights)

    But I sure ain't doing what the girl holding that banner did last year in London!! Brave lady!! It was a good message though. :)
     
    Daisy, Forestvon, Yessica and 8 others like this.
  6. Kalliope

    Kalliope Senior Member (Voting Rights)

    Messages:
    6,239
    Location:
    Norway
    I like it as a slogan. You think it would be ok to adopt it this use?
     
  7. andypants

    andypants Senior Member (Voting Rights)

    Messages:
    1,334
    Location:
    Norway
    Can’t see why not, it’s all for the same cause in one way or another:)

    In one way it would be great to have a separate campaign that is more directly geared towards donating to science/Tuller, but I also think it would be easier to get some traction if it’s one shared message. Easier to support and understand for outsiders.
     
  8. Keela Too

    Keela Too Senior Member (Voting Rights)

    There can be many tags, some take off, some don't. Ones I see regularly are:

    #pwme
    #MyalgicE
    #MEcfs (gradually going out of favour)
    #PACEtrial
    #PACE
    #PACEscandal
    #MyalgicEncephalomyelitis (less often as so long)
    #TimeforUNREST
    #MillionsMissing

    I think adding #Justice4ME would be good, but really who knows which ones will catch on.
    I also like #CanYouSeeMEnow

    No harm in using more than one in a tweet ;)
     
    Sly Saint, Binkie4, MEMarge and 5 others like this.
  9. andypants

    andypants Senior Member (Voting Rights)

    Messages:
    1,334
    Location:
    Norway
    Very true!
     
    Invisible Woman, MEMarge and Kalliope like this.
  10. Kalliope

    Kalliope Senior Member (Voting Rights)

    Messages:
    6,239
    Location:
    Norway
    In order to make a poll, we need to narrow down our list to 10 suggestions or fewer.
    I've tried to make a new list by removing the most similar suggestions and went from this list:

    #RealScience4pwME
    #ExploreMEScience
    #RealSCIENCEforME
    #donate4MEScience
    #biosci4ME
    #ActualScience
    #MEScience
    #4MEScience
    #GoFundMEScience
    #MEScienceWorks
    #MyalgicEncephaloAccuracy
    #IDonatedToMEScience
    #Justice4ME
    #JusticeForME
    #JustScience
    #JustScience4ME
    #Justice4MEpatients
    #RealScientistsRealScience
    #ScienceNotScientism
    #Justice4pwME
    #CanYouSeeMENow

    to this list:
    #RealScience4pwME
    #donate4MEScience
    #MEScience
    #GoFundMEScience
    #IDonatedToMEScience
    #Justice4ME
    #JustScience4ME
    #RealScientistsRealScience
    #ScienceNotScientism
    #CanYouSeeMENow

    Do you think this shortening of the list seems fair?
    If so, I'll make a poll of the remaining suggestions and we can vote for the one we like most.
     
    Alvin, Sly Saint, Binkie4 and 3 others like this.
  11. Alvin

    Alvin Senior Member (Voting Rights)

    Messages:
    3,309
    Typically i would say start with the original list then do a second poll for the top 5-10, but i do mostly like your condensed list so i'm not impartial here.
    Oh and my vote is for #RealScience4pwME as it would really get under the PACErs skins. :)
     
    MEMarge and Kalliope like this.
  12. Kalliope

    Kalliope Senior Member (Voting Rights)

    Messages:
    6,239
    Location:
    Norway
    Yes, that is what I tried at first. But turned out polls here have maximum ten answer options, therefore I reduced our list :)
     
  13. Alvin

    Alvin Senior Member (Voting Rights)

    Messages:
    3,309
    I see, perhaps they can raise that limit or 2.1 thread/polls?
     
    Kalliope likes this.
  14. Trish

    Trish Moderator Staff Member

    Messages:
    51,888
    Location:
    UK
    I'm not sure I understand what these hashtags are for - I use twitter occasionally, but tend to avoid bothering with hashtags.

    With respect to an opinion polls, I agree with your idea of choosing your preferred 10 options and having a vote. Otherwise these sort of polls can overwhelm you as you try to satisfy everyone's different opinions.

    It will be a good gauge of how many people on the forum are interested in the idea too. If it generates a lot of interest and enthusiasm, you can always run another poll to narrow it down between the favourites.

    Edited for clarity.
     
    Inara, MEMarge, MeSci and 2 others like this.
  15. Kalliope

    Kalliope Senior Member (Voting Rights)

    Messages:
    6,239
    Location:
    Norway
    Yes, I think ten options is plenty anyway, as long as most agree with how I narrowed it down.

    I don't think a hashtag like this will ever trend, but IF it catches on among us patients and supporters, and is used over time when we donate, I hope it might reflect how many we actually are, cheering for research into ME. It is one of many ways to get more visible, and a very easy (and free!) method. It can also be used on Facebook.

    And I agree a poll here on this forum is a good way to check whether or not there is sufficient enthusiasm for this idea. Let's see. I think it is worth a try :)
     
    Inara, MEMarge, MeSci and 3 others like this.
  16. Alvin

    Alvin Senior Member (Voting Rights)

    Messages:
    3,309
    As i understand you can click on a hashtag and see all the posts made with it, so anyone who wants to learn more would have lots of posts over time show under a particular hashtag
     
    Inara, MEMarge, MeSci and 5 others like this.
  17. Forestvon

    Forestvon Senior Member (Voting Rights)

    Messages:
    405
    #Justice4pwME
    as the tag Justice4ME on its own can look like someone campaigning for themselves.
    even #Justice 4MEcfs wd be clearer and many pwme are diagnosed with 'cfs'
     
  18. Kalliope

    Kalliope Senior Member (Voting Rights)

    Messages:
    6,239
    Location:
    Norway
    It seems like this is the most popular suggestion. But there were several versions of it, and if we kept all of them for the poll, we'd lose other suggestions.
    How about we see if Justice4ME wins the poll, and then continue the debate whether other versions of the slogan could work better?
     
  19. Forestvon

    Forestvon Senior Member (Voting Rights)

    Messages:
    405
    Assume you mean that if Justice4ME wins then we can discuss variations of it afterwards.

    Sorry I hadnt reached the post with the poll when I posted it as a lot to catch up, but posted it as would forget if I left it till I had rested and caught up!
     
    Louie41 and Kalliope like this.
  20. Kalliope

    Kalliope Senior Member (Voting Rights)

    Messages:
    6,239
    Location:
    Norway
    Poll up. Let's vote! :)
     

Share This Page