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Donation to Tuller/research as respond to our critics

Discussion in 'Advocacy Projects and Campaigns' started by Kalliope, Apr 9, 2018.

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Which slogan/hashtag do you prefer used on social media when donating to ME as response in debates?

Poll closed Apr 21, 2018.
  1. #RealScience4pwME

    4 vote(s)
    18.2%
  2. #donate4MEscience

    2 vote(s)
    9.1%
  3. #MEScience

    2 vote(s)
    9.1%
  4. #GoFundMEScience

    0 vote(s)
    0.0%
  5. #IDonatedToMEScience

    2 vote(s)
    9.1%
  6. #Justice4ME

    7 vote(s)
    31.8%
  7. #JustScience4ME

    2 vote(s)
    9.1%
  8. #RealScientistsRealScience

    0 vote(s)
    0.0%
  9. #ScienceNotScientism

    0 vote(s)
    0.0%
  10. #CanYouSeeMENow

    3 vote(s)
    13.6%
  1. Alvin

    Alvin Senior Member (Voting Rights)

    Messages:
    3,309
    That is a good one, though i prefer real science because it adds oomph to the PACE pusher its being deployed against.
    i kinda like #Justice4pwME
    Though we can have more then one in the end, many people seem to use several hashtags
     
    dangermouse, Trish and Kalliope like this.
  2. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    9,574
    Location:
    UK
    it was #Justice4ME

    eta: no problem with word separation
     
  3. Kalliope

    Kalliope Senior Member (Voting Rights)

    Messages:
    6,238
    Location:
    Norway
    Added to the list.

    #RealScience4pwME
    #ExploreMEScience
    #RealSCIENCEforME
    #donate4MEScience
    #biosci4ME
    #ActualScience
    #MEScience
    #4MEScience
    #GoFundMEScience
    #MEScienceWorks
    #MyalgicEncephaloAccuracy
    #IDonatedToMEScience
    #Justice4ME
    #JusticeForME
    #JustScience
    #JustScience4ME
     
    dangermouse, MSEsperanza and Alvin like this.
  4. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    9,574
    Location:
    UK
    #Justice4ME

    From the article in the independent
    "
    Time for Unrest: Why patients with ME are demanding justice"

    see also
    "
    Severe ME - Featuring: "Justice for Karina Hansen"

    Blog by Jason

    Patients battle for justice

    from MillionsMissing
    "thousands of people around the world will rally to demand justice for myalgic encephalomyelitis"

    The Exploration of Justice through film:
    "First-time director Jennifer Brea searches for justice and answers in her documentary “Unrest.”

    It might make a good tag for this years #MillionsMissing protests too(?)
     
    Jan, dangermouse, Arnie Pye and 4 others like this.
  5. Indigophoton

    Indigophoton Senior Member (Voting Rights)

    Messages:
    849
    Location:
    UK
    Borrowing from the idea of standing up for science, and for justice, #standup4ME.

    Makes people feel involved?
     
    Arnie Pye, dangermouse and Kalliope like this.
  6. Arnie Pye

    Arnie Pye Senior Member (Voting Rights)

    Messages:
    6,048
    Location:
    UK
    Yes, I prefer your suggestion to #JusticeForME, but I would be happy with either.
     
  7. andypants

    andypants Senior Member (Voting Rights)

    Messages:
    1,334
    Location:
    Norway
    I like #Justice4ME - simple, to the point, flexible for many different uses and almost impossible to get wrong or misunderstand:)
     
  8. Keela Too

    Keela Too Senior Member (Voting Rights)

    #Justice4ME or #JusticeForME

    Either one is fine. The word Justice is perfect to our cause I think. We have been treated unjustly by the BPS researchers, which has led to: unjust "science"; unjust medical treatment; unjust reporting; and an unjust social perception of people with ME.

    This tag goes so much further than just the science, but ALSO covers the science angle too. A very strong tag in my mind. :)
     
    Jan, Chezboo, JemPD and 7 others like this.
  9. Louie41

    Louie41 Senior Member (Voting Rights)

    Messages:
    1,308
    Location:
    upper Midwest US
    #Ju$tice4ME
     
  10. Keela Too

    Keela Too Senior Member (Voting Rights)

    Just checked over on twitter. $ doesn't work for a tag. Only the #Ju part will highlight the rest stays untagged. Same for any symbols :(
     
  11. Louie41

    Louie41 Senior Member (Voting Rights)

    Messages:
    1,308
    Location:
    upper Midwest US
    Oh, poo! :banghead::banghead::banghead:

    Thanks, @Keela Too . . . .sigh

    Being a Twitter troglodyte does have its downside.
     
  12. MSEsperanza

    MSEsperanza Senior Member (Voting Rights)

    Messages:
    2,855
    Location:
    betwixt and between
    Apologies for being extra-taciturn at the moment - it's for the obvious (ME) reason.

    In my opinion, three points to consider re the fabulous hashtag idea:

    1. should be accessible for everyone, hence e.g. to be easily understood when read by a computer voice (avoid too many abbreviations)

    2. It sounds somehow odd to me to demand justice for a disease (Justice4ME) in the sufferers' place. Since "pwME" already was agreed to not be a good solution, #Justice4MEpatients would be perhaps better, but still quite long?

    3. Those are just for fun:

    #Don'tFeedJunkScience #Donate4realMEresearch
     
    Last edited: Apr 10, 2018
  13. dangermouse

    dangermouse Senior Member (Voting Rights)

    Messages:
    791
    Great brainstorming and teamwork :thumbup:

    I reckon in a day or so you’ll have a few solid options to put to a poll.

    I’m still thinking #Justice4ME but would be happy with a few of the other suggestions.
     
  14. Allele

    Allele Senior Member (Voting Rights)

    Messages:
    1,047
    #RealScientistsRealScience
    #ScienceNotScientism
     
    Alvin, Kalliope and dangermouse like this.
  15. JemPD

    JemPD Senior Member (Voting Rights)

    Messages:
    3,916
    I think #JusticeForME is excellent, perfect. we should have that as a hashtag for something even if it's not this.
     
    Jan, Arnie Pye, Binkie4 and 7 others like this.
  16. Trish

    Trish Moderator Staff Member

    Messages:
    51,880
    Location:
    UK
    Maybe Justice4pwME to stop people thinking 'ME' means 'myself'.
     
    Arnie Pye, Alvin, dangermouse and 5 others like this.
  17. Barry

    Barry Senior Member (Voting Rights)

    Messages:
    8,385
    I think "Justice" works well, given that everything else - good science, honest media coverage, etc - is all covered by the notion of justice. If we could truly say that PwME now had justice, then everything else would have fallen into place. If only.
     
  18. Louie41

    Louie41 Senior Member (Voting Rights)

    Messages:
    1,308
    Location:
    upper Midwest US
    I really like #Justice4ME. There will, after all, be some context that will clarify that it refers to myalgic encephalomyelitis, won't there? And what's wrong with saying Justice for Me? We do need justice.

    I was sick for a long time before I figured out the "Pw" part. Does it mean anything to the vast majority of people who might see the hashtag?

    ------------
    ETA second paragraph
     
    Last edited: Apr 10, 2018
    andypants, Binkie4, Keela Too and 4 others like this.
  19. Barry

    Barry Senior Member (Voting Rights)

    Messages:
    8,385
    I do think that #Justice4ME rolls of the tongue well, which I suspect is quite important. Much easier for someone to talk to someone else about "Justice for M.E." than "Justice for People with M.E."
     
  20. MSEsperanza

    MSEsperanza Senior Member (Voting Rights)

    Messages:
    2,855
    Location:
    betwixt and between
    Hm. Still skeptical. :emoji_thinking:

    I don't want justice for ME, unless "justice" meant sentencing ME to leave you and me forever. :emoji_v:
     
    dangermouse and Kalliope like this.

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