Donation to Tuller/research as respond to our critics

#goodScience4PwME ?

Avoiding lots of capitals in case some PwME find that to over the top?

 

If your using it against PACErs its saying they are peddling alternative facts and we want reality

 

Right now it's David Tullers campaign that needs funding. Should we just focus on that first?

Could we start with something like #Tuller4ME or something to make the most of the current short window of opportunity and think of something else for the longer term?

With David's permission of course.

 

Yes, I agree that right now the focus is on Tuller's fundraising. But I am thinking that a more general hashtag might be better instead of creating a new one when Tuller's campaign is over. The campaign is donating to research (and Tuller) as a response to tweets/articles etc from the biopsychosocio-crowd. When Tuller's crowdfunding is over, one can use the same hashtag and donate to OMF, InvestinME, SolveMECFS etc etc.

 

I like this one too.

 

Or two hashtags that are short and make the point: #ImWithTuller #biosci4ME

 

#ActualScience

 

#MEScience? (I don't know anything about tags!)

 

I like the #real/actualscience4me options, but the Norwegian campaign simply uses #trollmessage, and doesn't refer to refugees. Everyone can relate to the idea of a troll message, and sympathise/empathise - no explanation required.

Since the BPS advocates are effectively trolling ME patients, maybe something similar that helps raise sympathy and awareness? #trolledME ?

 

#4MEScience?

I wonder if use of PwME in any form will be confusing for people who support us, but aren't conversant with that term.

Think this is a great idea, by the way, @Kalliope!

 

Yes. I see your point. Using PWME will result in two things to get across instead of one.

#Donating2ME ...perhaps..

 

True - we can use whatever words we want and make is super simple. The Refugee Council needed a campaign (and to spend a lot of money) to get across what #Trollmelding indicates. We don't have such resources, so a hashtag which is easy to understand, like and support is important.

There are so many creative people here, so I'm sure we'll come up with something

 

not sure about that one. It sounds a little selfish and might feed into the needy, weak, attention seeking ME patient narrative.

I do like #trolledME @Indigophoton!

 

I see your point.

Regarding Troll.. I don't know how constructive it is to characterise people/meanings with that label in the ME-debate. I'd like the message to be pro science for ME and a way to calm waters rather than heating things further.

 

Don 't want my suggestion to get lost in the point about PwME.

#4MEScience?

 

#GoFundMEScience ?

#MEscienceWorks?

 

Using capitals to separate words in hashtags is very important for screen readers (apps etc that convert text into synthesized speech) to function properly.

Having said that, I agree. The simpler the better

ETA: Brilliant idea/thread, @Kalliope! Definitely worth a try! I would join in, use the hashtag and donate

 

#TruthTuller

 

Any hashtag should go for the larger message and not include my name, I think.