Donation to Tuller/research as respond to our critics

[Kalliope]

I am sure many of you saw Michael Sharpe's latest tweet about Tuller's crowdfunding. That spurred a lot of response and, even better, donations to the crowdfunding.

Could this actually be a resource for us? Can we turn badmouthing and negative characteristics of ME-patients and biomedical research into something positive?

The Norwegian Refugee Council recently created the hashtag #Trollmelding (Trollmessage). If you see something infuriating on social media on racism, negative characteristics of refugees etc then as a response you can donate to the Refugee Council and use their hashtag.

Perhaps we could do something similar?

I suggest a hashtag something along the line of #PWMEStandWithScience and a donation to Tuller or biomedical research as response whenever our biopsychosocial friends present their opinions and criticises biomedical research and investigative journalism.

What do you think? Could it be worth a try?

 

[Keela Too]

Sounds a good idea. However I think a shorter hashtag would be good.

#pwme4science

Actually best would be #Science4ME LOL

 

[Kalliope]

Sounds a good idea. However I think a shorter hashtag would be good.

#pwme4science

Actually best would be #Science4ME LOL

Agree. Short hashtag is good. #Science4ME is a good suggestion, but perhaps a bit confusing if it refers to two different things.

#PwME&Science perhaps?

 

[Keela Too]

Yes - #Science4ME wasn't actually a suggestion, just an observation.

I'm not sure if "&" works as a hashtag

 

[Keela Too]

Just tested over on Twitter & doesn't work

 

[Alvin]

Sounds a good idea. However I think a shorter hashtag would be good.

I agree, a perfect hashtag is usually short, gets the point across and explains itself (and prompts viewers to identify with it)

 

[Kalliope]

Just tested over on Twitter & doesn't work

Thanks. Didn't know that.

 

[Keela Too]

#TullerScience

#ExploreMEscience

#RealSCIENCEforME

 

[Kalliope]

I agree, a perfect hashtag is usually short, gets the point across and explains itself (and prompts viewers to identify with it)

Yes! Also I want it to be something non aggressive. Simply a support for research, which anyone can agree with.

 

[Kalliope]

#TullerScience

#ExploreMEscience

#RealSCIENCEforME

Love the brainstorming! keep them coming! I am completely out of further ideas myself right now, but will keep pondering.

 

[Keela Too]

#IsupportTULLER ?? (After asking David's okay of course)

 

[Alvin]

#IsupportTULLER ?? (After asking David's okay of course)

That is good but something that could be used for any ME/CFS post is probably more likely to catch on, #RealSCIENCEforME or #PWMEStandWithScience are great generic hashtags

 

[Kalliope]

#IsupportTULLER ?? (After asking David's okay of course)

I like it.
I was thinking that IF we can start a campaign, perhaps it can live on also after Tuller's crowdfunding is over? So perhaps the hashtag should be more general?

 

[Trish]

I like #pwME4science.

 

[Keela Too]

I like #pwME4science.

Yes me too.

 

[Alvin]

I like #pwME4science.

That is good but it conjures up people donating their bodies to science (maybe i'm just overtired)
How about #Science4pwME

 

[Kalliope]

Yes me too.

I like it as well.

I hope more suggestions will come though. Perhaps we can give this a couple of days and see how the thread and suggestions develop, have a poll among our favourite hashtags and then launch?

 

[Alvin]

#RealSCIENCEforME

This one is good too, good for dealing with psychobabblers

 

[MarcNotMark]

#donate4MEscience

 

[unicorn7]

I think #realSCIENCEforME is a good one