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DoH research

Discussion in 'General ME/CFS News' started by JohnTheJack, Jul 12, 2018.

  1. JohnTheJack

    JohnTheJack Senior Member (Voting Rights)

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    I thought it would be interesting to see which studies were included in the spending on ME in Dinenage's reply to Carol Monaghan's written question.

    I asked:

    The Answer states the NIH funding by the Biomedical Research Centres and Units was as
    follows:
    2014-15 280,442; 2015-16 295,626; 2016-17 130,958.
    Please state the following:
    1. The names of the trials included in the £280,442 figure for 2014-15.
    2. The names of the trials included in the £295,626 figure for 2015-16.
    3. The names of the trials included in the £130,958 figure for 2016-17.
    The Answer also states that the NIHR Clinical Research Network provided infrastructure for
    a number of trials and the expenditure was as follows:
    2014-15 134,769; 2015-16 125,176; 2016-17 82,866
    Please state the following:
    4. The names of the trials included in the £134,769 figure for 2014-15.
    5. The names of the trials included in the £125,176 figure for 2015-16.
    6. The names of the trials included in the £82,866 figure for 2016-17

    I got the reply this morning.
     

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  2. Robert 1973

    Robert 1973 Senior Member (Voting Rights)

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    Thanks John. Can you add a link to Monaghan’s question. Out of interest, was this a FOI request or did you just write to the DHSC?
     
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  3. JohnTheJack

    JohnTheJack Senior Member (Voting Rights)

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    Good idea. Here is the question:

    To ask the Secretary of State for Health and Social Care, how much funding from the public purse he plans to allocate to biomedical research into Myalgic Encephalomyelitis in the current financial year.
    https://www.parliament.uk/business/...s/written-question/Commons/2018-05-17/145357/

    I did first email the DoH and they directed me to the NIHR, so I did an FOI to the NIHR... which had to go through the DoH.

    I have also asked the MRC for the studies they funded and am expecting a reply within a week.
     
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  4. Trish

    Trish Moderator Staff Member

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    Is there any way of matching this information with individuals actually carrying out these studies, and whether any has led to publication?

    @JohnTheJack, I assume that should be NIHR in your first post, not NIH.
     
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  5. JohnTheJack

    JohnTheJack Senior Member (Voting Rights)

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    1. There may be. I suppose PubMed may be a good place to start.

    2. Oops, yes, that was a typo in my request in fact. Oh well, they understood.
     
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  6. Trish

    Trish Moderator Staff Member

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    I forgot to say thank you, @JohnTheJack. I'm sure we're all really appreciative of your efforts to find out so much information that really should be publicly available.
     
  7. JohnTheJack

    JohnTheJack Senior Member (Voting Rights)

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    I asked the same questions to the MRC. They responded today saying they have now updated their website with that information.

    It's available here https://mrc.ukri.org/funding/scienc...medicine/our-science-and-contacts-psmb/cfsme/ Under 'MRC-funded research projects'

    They haven't actually funded much. Two are about 'SWS'. I'm not sure what that is. Another one is 'A Unified Mechanism for Functional Neurological Symptoms' which doesn't actually sound 'biomedical'.
     
  8. Andy

    Andy Senior Member (Voting Rights)

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    Seems that it's Slow Wave Sleep, from a quick Google. First example I found, Can enhancing SWS improve daytime function in patients with CFS?

    We've discussed this one at length in a number of threads on the forum and it's biomedical status is, to say the least, questionable.
     
  9. JohnTheJack

    JohnTheJack Senior Member (Voting Rights)

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