Diana And Alex Klurfeld Launch New Awareness Campaign to Include Orphan Diseases (With Klurfeld Cares)

Wyva

Senior Member (Voting Rights)
This is a press release from a non-profit org in the US: https://finance.yahoo.com/news/diana-alex-klurfeld-launch-awareness-230000857.html

"Because of these challenges, Diana and Alex Klurfeld are devoting this latest awareness campaign to calling attention to the need for increased research and funding for orphan diseases like Ehlers Danlos Syndrome, Lyme Disease, ALS, Chronic Fatigue Syndrome, Duncan's Syndrome, and the many, many others."

"About Alex and Diana Klurfeld:

Alex Klurfeld is a physical therapist and entrepreneur. Diana Klurfeld has worked in the health care industry for over a decade and is also a volunteer patient advocate. Founders of Klurfeld Cares, Alex, and Diana are dedicated to bringing awareness and resources to underserved patient populations that face a shortage of medical industry interest in their ailments.

About Klurfeld Cares:

Klurfeld Cares is a New York-based grassroots movement of individual volunteers, led by husband and wife team Alex and Diana Klurfeld, aiming to make a difference in the world for those with under-recognized and under-served diseases. Through informational awareness campaigns, the creation of informational databases, and education, Klurfeld Cares advocates for solutions and understanding for those who don't have a voice."
 
Surprisingly they cover a variety of important under reported stuff on there.

They just covered a human rights charity that is bringing a case for Manslaughter, against coastguards in France and UK.

For (repeated) failure to respond to SOS calls from people in trouble at sea. In relation the recent tragedy where 27 people were drowned.

I guess finance distribution for healthcare is relevant and financial burden is involved in legal action.
 
I had a look at their website. It's just a few pages with very little information and asking for email addresses. She does a bit of local volunteering and he works as a physical therapist.

I am suspicious of a so called non profit named after the individuals running it with vague aims and no real information. Is it just a front to collect email addresses of potential clients for their private clinical practice?
 
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Yes, unfortunately sounds more like a business model than genuine advocacy for patients.

Quick google search:

#Diana & Alex Klurfeld Ask How COVID-19 Affects Those with Ehlers Danlos? | The Hudson Weekly, August 31, 2021

https://hudsonweekly.com/diana-alex-klurfeld-ask-how-covid-19-affects-those-with-ehlers-danlos/

Alex & Diana from Klurfeld Cares interview N.H. who had COVID-19, and she has Ehlers Danlos.

Diana Klurfeld: What was that like to go through Covid as someone with EDS?

NH: “It was miserable,” she said, “but not any worse than the flu.”

Klurfeld Cares wants to address the questions and concerns of what you can expect in this uncertain world with COVID-19 lurking around every corner, waiting to grab you and have its way with you. After all, we have a lowered immune system already with our Ehlers Danlos. Plus, how do we tell when we have it? We already have so many of the symptoms. Let’s talk about these concerns.
Alex & Diana from Klurfeld Cares interview N.H. who had COVID-19, and she has Ehlers Danlos.

Diana Klurfeld: What was that like to go through Covid as someone with EDS?


# Diana Klurfeld on Overcoming the Plague of Fatigue When Living with a Rare Condition | The American Reporter, March 27, 2021


https://www.theamericanreporter.com...of-fatigue-when-living-with-a-rare-condition/

When you have a rare condition, such as Ehlers-Danlos, POTS, mast cell disorder, or chronic fatigue syndrome, fatigue tends to be a significant symptom. However, you do not have to succumb to it as wholly and completely as you have been!

According to an informal study conducted by Diana Klurfeld Cares, you do not have to live day to day, dragging yourself from bed to recliner to dining room table and back again. Exhaustion doesn’t have to be par for the course. It can be a symptom that you deal with occasionally rather than fight with daily. Following are the tricks to overcoming the plague of fatigue when living with a rare condition.

We interviewed Diana Klurfeld who is using her years of experience in the medical field to launch a start-up awareness site that will hopefully serve as a resource for those currently struggling with rare diseases. Diana is not a doctor and advises to consult your physician before engaging in any self help methods like the ones discussed here.
Find the Root Cause

Q: What tends to cause fatigue in rare diseases and how can you manage it?

Diana Klurfeld: Every condition is different of course and we’re primarily talking about the ones for which fatigue is a byproduct. But, don’t assume your condition bears all of the blame for your feelings of exhaustion. Your disease or condition might not be the only cause of your fatigue.

Institute a Plan for Exercise
Q: How do you exercise when you’re feeling exhausted?

Diana Klurfeld: There is a secret to exercising when you have chronic fatigue. For one, overexercising makes chronic fatigue worse. In fact, it can cause it. Furthermore, it can be the main cause of chronic fatigue syndrome itself!

Many people with Ehlers-Danlos, POTS, or another type of rare disease don’t feel like spending hours at the gym anyway. Here’s the good news. You don’t have to! It’s not good for you. It will only make you more tired.

There are only a few types of exercise that are recommended for people with rare conditions. One is gentle stretching, such as Yoga. Another is high-intensity interval training (HIIT), which is the most effective exercise for increasing energy. HIIT training may be difficult at first, but these exercises are very short in duration. They are short, intense “bursts” of activity that give you a full-body workout in a short amount of time.
However, if you’ve not been exercising, getting moving at all will make a difference in your fatigue. If you dislocate easily or have other issues you will need to temper this advice and remember to always consult your doctor and other medical professionals, such as your physical therapist, before doing anything new.


# Alex Klurfeld's business website:


The Klurfeld Difference
If you've already been to other physical therapists' offices then you will recognize the difference the moment that you step into one of Alex's clinics. The warm personal touch and battery of physical therapy modalities specifically designed for your issue, will make you wish you'd found us sooner.
https://alexklurfeld.com/


# More about Diana Kurfeld:


https://muckrack.com/diana-klurfeld
 
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I had a look at their website. It's just a few pages with very little information and asking for email addresses. She does a bit of local volunteering and he works as a physical therapist.

I am suspicious of a so called non profit named after the individuals running it with vague aims and no real information. Is it just a front to collect email addresses of potential clients for their private clinical practice?

I haven’t looked at this one. But I have a pretty firm policy not to look at stuff named after founders by themselves :rolleyes::rolleyes: So I am happy to strong agree with you on this one @Trish
 
https://www.justice.gov/usao-edny/p...ers-settle-civil-healthcare-fraud-allegations
edny_header.jpg

FOR IMMEDIATE RELEASE
Friday, October 2, 2020
New York Physical Therapy Providers Settle Civil Healthcare Fraud Allegations
Williamsburg and Euro Physical Therapy and Their Operators to Pay $4 Million to Resolve Allegations of False Claims to Medicare, Medicaid and Federally-Funded Healthcare Programs
Williamsburg Physical Therapy, P.C. and Euro Physical Therapy, P.C. have agreed to pay the United States and the State of New York $4 million to resolve civil allegations that they falsely billed Medicare, Medicaid, the Federal Employees’ Compensation Act Program (FECA) and the Federal Employees’ Health Benefits Program (FEHBP) for physical therapy services from 2008 to 2018. The settlement also resolves claims against the owners of the two physical therapy practices, Alex Klurfeld and Diana Klurfeld, and First Plus Services, Inc., a management company associated with the practices.

Seth D. DuCharme, Acting United States Attorney for the Eastern District of New York; Matthew Modafferi, Special Agent-in-Charge, United States Postal Service, Office of the Inspector General (USPIS-OIG); Michael Mikulka, Special Agent-in-Charge, U.S. Department of Labor, Office of Inspector General, New York Regional Office (DOL-OIG); and Norbert E. Vint, Deputy Inspector General Performing the Duties of the Inspector General, Office of Personnel Management (OPM OIG), announced the settlement. Mr. DuCharme thanked the Office of the Inspector General for Health and Human Services and Office of the New York State Attorney General for their assistance in the investigation.

Williamsburg Physical Therapy and Euro Physical Therapy are New York professional corporations owned and operated by Alex Klurfeld, a physical therapist, and Diana Klurfeld, his wife, that provide physical therapy to the public, including to Medicare, FECA, FEHBP, and Medicaid beneficiaries in the New York City. Williamsburg Physical Therapy and Euro Physical Therapy have operated under those names and others at the following addresses:

* 240 South 3rd Street, Brooklyn

* 182 Havermayer Street, Brooklyn

* 705 Manhattan Avenue, Brooklyn

* 37-49 91st Street, Queens

* 452 Fort Washington Avenue, Manhattan

* 601 West 182nd Street, Manhattan

* 3224 Grand Concourse, Bronx

First Plus Service, Inc. is a New York corporation owned and operated by Diana Klurfeld that conducts administrative services for Williamsburg Physical Therapy and Euro Physical Therapy, including medical billing and payroll.

The settlement resolves allegations that the defendants submitted false claims to federal healthcare programs for physical therapy services provided or supervised by someone other than the licensed physical therapist identified on the claim, including unlicensed aides. The settlement also resolves claims that the defendants wrongfully backdated services after treatment authorizations had expired.

“Physical therapy performed by persons who are neither licensed nor supervised by licensed therapists may jeopardize patient health. The knowing submission of claims for payment for such services to federally-funded health programs also defrauds taxpayers. This settlement reaffirms this Office’s commitment to rooting out health care fraud and practices that may cause harm to patients,” stated Acting U.S. Attorney DuCharme.

“This settlement sends a clear message that the government is dedicated to protecting the rights of patients and ridding corruption from federal benefit programs. The U.S. Postal Service Office of Inspector General would like to thank our law enforcement partners for their commitment and efforts in this investigation. The USPS OIG will continue to vigorously investigate those who engage in activities to defraud federal benefit programs and the U.S. Postal Service,” stated USPIS-OIG Special Agent-in-Charge Modafferi.

“Ensuring the integrity of the Department’s Workers Compensation Programs is an important part of the mission of the Office of Inspector General. We will continue to work with our law enforcement partners to vigorously pursue those that engage in fraud involving programs administered by the U.S. Department of Labor,” stated DOL-OIG Special Agent-in-Charge Mikulka.

“The OPM OIG is committed to holding providers accountable for fraudulent claims,” stated OPM Deputy Inspector General Vint. “This settlement is a result of the hard work of our investigative staff and our partners at the Department of Justice.”

The allegations were brought to the government’s attention through the filing of a complaint pursuant to the qui tam provisions of the False Claims Act. Under the Act, private citizens can bring suit on behalf of the United States and share in any recovery. The claims resolved by the settlement are allegations only; there has been no determination of liability.

The United States’ case was handled by Assistant United States Attorney Lisa Kutlin of the Office’s Civil Division, with assistance from Affirmative Civil Enforcement Auditor Michael Gambrell.

E.D.N.Y. Docket No.: 16-CV-4819 (WFK)
 
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