BMJ December 21st, 2002
'What should we say to patients with symptoms unexplained by disease? The “number needed to offend”
Jon Stone,
Wojtek Wojcik,
Daniel Durrance,
Alan Carson,
Steff Lewis,
Lesley MacKenzie,
Charles P Warlow,
Michael Sharpe
'.... We calculated an “offence score” for each diagnosis as the proportion of patients who endorsed one or more of the following connotations, which we deemed offensive: “putting it on,” being “mad,” or “imagining symptoms.” We then used this value to calculate a “number needed to offend”—that is, the number of patients who can be given this diagnosis before one patient is offended....'
'Many diagnostic labels that are used for symptoms unexplained by disease have the potential to offend patients. Although “medically unexplained” is scientifically neutral, it had surprisingly negative connotations for patients. Conversely,
although doctors may think the term “functional” is pejorative, patients did not perceive it as such.
As expected, “hysterical” had such bad connotations that its continued use is hard to justify, although it is the only term in this list that specifically excludes malingering.
Diagnostic labels have to be not only helpful to doctors but also acceptable to patients. Many of the available labels did not pass this basic test, but “functional” (in its original sense of altered functioning of the nervous system
3) did. This label has the advantage of avoiding the “non-diagnosis” of “medically unexplained” and side steps the unhelpful psychological versus physical dichotomy implied by many other labels. It also provides a rationale for pharmacological, behavioural, and psychological treatments aimed at restoring normal functioning of the nervous system.
4 We call for the rehabilitation of “functional” as a useful and acceptable diagnosis for physical symptoms unexplained by disease.'
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