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Developing an Online Program for Self-Management of Fatigue, Pain, and Urgency in Inflammatory Bowel Disease, 2021, Moss-Morris ,Windgassen et al

Discussion in 'Other psychosomatic news and research' started by Sly Saint, Jun 25, 2021.

  1. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Developing an Online Program for Self-Management of Fatigue, Pain, and Urgency in Inflammatory Bowel Disease: Patients’ Needs and Wants

    Abstract
    Background

    Inflammatory bowel disease (IBD) is a lifelong relapsing–remitting condition, characterized by troublesome symptoms including fatigue, pain, and bowel urgency. These symptoms can persist even in clinical remission and have a debilitating impact on social, work-related and intimate domains of life. Symptom self-management can be challenging for some patients, who could potentially benefit from an online self-management tool.

    Aims
    We aimed to understand patients’ symptom self-management strategies and preferred design for a future online symptom self-management intervention.

    Methods
    Using exploratory qualitative methods, we conducted focus group and individual interviews with 40 people with IBD recruited from UK clinics and from community-dwelling members of the Crohn’s and Colitis UK charity; data were collected using a digital audio recorder, and transcribed and anonymized by a third party (professional) transcriber. We used framework analysis for focus group data and thematic analysis for interview data.

    Results
    The data provided three core themes: ways of coping; intervention functionality; and intervention content. Participants attempt to manage all three symptoms simultaneously, recognizing the combined influence of factors such as food, drink, stress, and exercise on all symptoms. They wanted an accessible online intervention functioning across several platforms, with symptom and medication management, and activity-tracking features.

    Conclusions
    Patients reported numerous ways of self-managing symptoms of fatigue, pain, and urgency/incontinence related to IBD and expressed their needs for content, design, and functionality of the proposed intervention. Based on this and existing intervention development literature, the IBD-BOOST online self-management intervention has now been developed and is undergoing testing.

    https://link.springer.com/article/10.1007/s10620-021-07109-9
     
    Last edited by a moderator: Jun 25, 2021
    oldtimer, MEMarge, DokaGirl and 2 others like this.
  2. InitialConditions

    InitialConditions Senior Member (Voting Rights)

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    We don't need it and we don't want it.
     
    Last edited by a moderator: Jun 25, 2021
  3. InitialConditions

    InitialConditions Senior Member (Voting Rights)

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    I really hate this 'app for everything' approach. My mum lives with IBD. She manages it with medication, but sometimes it flares for no good reason. I have no idea what this tool would offer her that she hasn't figured out herself through common sense.
     
    alktipping, oldtimer, MEMarge and 6 others like this.
  4. rvallee

    rvallee Senior Member (Voting Rights)

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    Uhhhh. Words. Meaning. Do they simply not matter anymore? Gauging everything on ICU setting is absurd.
     
    Last edited by a moderator: Jun 25, 2021

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