The local Danish newspaper Ukeavisen Esbjerg has written several articles about a severe ME-patient who is bed bound and nursed by her parents, and whom the municipality sees fit to work and thus not in need of welfare money. Today the newspaper print a manifest made by 85 ME-patients who tell their stories and ask for better care for ME-patients. This manifest will be delivered to the Danish health authorities on Thursday. Ugeavisen Esbjerg - 85 stemmer fra ME-mørket: Hør os nu google translation - 85 voices from the ME-darkness: Listen to us now Manifest in the newspaper (digital version - so not possible to google translate) Demands (translated in a hurry by me, so should not be quoted as the Manifest's demands, but will give an idea of its contents) Recognition of ME as a physiological disease Education for doctors about ME That information about ME is updated That the health authorities takes responsibility for the treatments given to ME-patients as GET/CBT are harmful, or at least that patients are given information about risks That doctors seek information about treatments that might be of help That the health authorities and others get updated about the disease and diagnostic criteria That neurasthenia, chronic fatigue syndrome, burn out syndrome, fatigue syndrome and ME get individual diagnostic code That ME centres are established and with a somatic approach However, the health authorities themselves say to the newspaper that they've established a committee that will develop new guidelines about assessment and treatments of functional disorders, and that ME-patients will benefit from this. It is not true that they are not updated on international research. They are in contact regularly with experts internationally. For instance, while working on the new guidelines, they've been in touch with Norwegian colleagues in order to share research and knowledge. According to them, Norway and Denmark are in line with each other regarding treatment principles.