DecodeME in the media

rvallee said:
They've also easily gotten away with it for decades, putting about as much effort into as farting in a general direction. That breeds laziness and complacency. It's one reason why they are so awful at arguing their case: they never had to. They could always simply voice their opinions out loud and it was received as simple statements of facts.

So far I don't remember there being a single contentious interview with any of them, because they are never placed in such a situation. They are always given total deference and never face critical questioning. They are instead platformed into being allowed to say whatever makes them look good.
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This.

"...because they are never placed in such a situation."​

And they make damn sure of it.
 
MrMagoo said:
Am I right in summarising that there was no signals found for Long Covid?
Which may explain why our “Professor of Thinking Yourself Better” hasn’t been tempted to get involved or react.
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We didn't look at Long Covid?

From the FAQ,
"What do these results mean for people with Long Covid?

Some people with Long Covid experience symptoms that overlap with ME/CFS, such as post-exertional malaise, fatigue and brain fog. While DecodeME didn’t specifically study Long Covid, 729 of our participants reported that they developed ME/CFS following a COVID-19 infection. More studies are needed to explore the links between ME/CFS and Long Covid in detail."
 
Evergreen said:
What [Carson] does manage to do is put out into the public sphere that "diagnosis by questionnaire" is a thing in ME/CFS - marvellously effective at undermining the whole illness, patients and health professionals in one fell swoop.
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Ask him about assessing treatment outcome by questionnaire, which is the preferred method of the psychosomatic/FND club.

He might come to regret opening that can of worms.
 
Andy said:
We didn't look at Long Covid?

From the FAQ,
"What do these results mean for people with Long Covid?

Some people with Long Covid experience symptoms that overlap with ME/CFS, such as post-exertional malaise, fatigue and brain fog. While DecodeME didn’t specifically study Long Covid, 729 of our participants reported that they developed ME/CFS following a COVID-19 infection. More studies are needed to explore the links between ME/CFS and Long Covid in detail."
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There were no outcomes for Long Covid like no gene signals found because you didn’t look at LC?
I know pwLC were included, but there’s no “results” regarding LC.

Our Professor has proudly made himself a “I recovered from Long Covid” badge, so I guess he’s not claiming he cured his own ME.
 
MrMagoo said:
I know pwLC were included, but there’s no “results” regarding LC.
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No, we included people who developed ME/CFS following a COVID-19 infection.

The preprint says,
"Long COVID, a condition with similar symptoms and starting, like most cases of ME/CFS, after an infection, has one genetic association near FOXP4 (72), but this was not shared with ME/CFS (p = 0.59 for rs9367106)."

Thread for that paper here.
 
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