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David Tuller - Trial By Error: The Shopping Bag Study; and New York State’s Revamped Website

Discussion in 'General ME/CFS news' started by Eagles, Apr 24, 2018.

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  1. Eagles

    Eagles Senior Member (Voting Rights)

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    Trial By Error: The Shopping Bag Study; and New York State’s Revamped Website

    24 April 2018

    By David Tuller, DrPH

    http://www.virology.ws/2018/04/24/t...g-study-and-new-york-states-revamped-website/

    And now, from our good friends in the psychology department at the University of Bath, comes the shopping bag study we’ve all been waiting for. Here’s some information recently disseminated by the university:

    The purpose of this study is to look at how people with CFS/ME respond when asked to do a physically exerting task, and what thoughts and feelings they have while they are doing the task. We would like to compare responses to people without CFS/ME…

    If selected, you will be asked to complete some questionnaires. These questionnaires will ask you about various things such as fatigue and mood. You will be given the choice to complete them online or have paper copies posted to you…

    You will also be asked to attend a one-off testing session which will last no longer than an hour and during which you will be asked to complete a practical task. The task will involve carrying a shopping bag. This will be recorded and you will be asked to watch this back and answer some questions about it…
     
    Last edited: Apr 24, 2018
    Eagles, Apr 24, 2018
    #1
    FreeSarah, ahimsa, Woolie and 23 others like this.
  2. Trish

    Trish Moderator Staff Member

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    Trish, Apr 24, 2018
    #2
    Hutan, Forbin, Barry and 9 others like this.
  3. Andy

    Andy Committee Member

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    @Eagles , please could you edit your post so that it includes at most 2-3 paragraphs. I'm fairly confident that @dave30th won't complain about copyright issues in this regard, but it's generally good practice to use, and also encourages more traffic to Dave's blog. :)
     
    Andy, Apr 24, 2018
    #3
    BruceInOz, Hutan, Forbin and 14 others like this.
  4. Alvin

    Alvin Senior Member (Voting Rights)

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    I love the hard hitting bluntness of David's articles, these paragraphs stood out in that regard

     
    Alvin, Apr 24, 2018
    #4
    Forbin, Invisible Woman, EzzieD and 6 others like this.
  5. pteropus

    pteropus Senior Member (Voting Rights)

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    the Shopping Bag Study made me think of those fatuous suggestions to 'get a new haircut' or 'buy a new dress' when you're feeling a little low ...
     
    pteropus, Apr 24, 2018
    #5
    Forbin, Arnie Pye, Melanie and 10 others like this.
  6. NelliePledge

    NelliePledge Moderator Staff Member

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    As long as they keep setting themselves up DT is going to keep scoring the goals/hitting them for six/knocking out of the park
     
    NelliePledge, Apr 24, 2018
    #6
    Forbin, Melanie, Webdog and 6 others like this.
  7. Snowdrop

    Snowdrop Senior Member (Voting Rights)

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    Futile thought but I'd like to know how people considering signing up for this mess, I mean study, can be warned off -- that it would only be used to create nonsense through disingenuous interpretations.
     
    Snowdrop, Apr 24, 2018
    #7
    Luther Blissett, Forbin, Melanie and 2 others like this.
  8. Keela Too

    Keela Too Senior Member (Voting Rights)

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    I just feel so sorry for which ever young researcher has been persuaded that this might be a good idea. :(
     
    Keela Too, Apr 24, 2018
    #8
    Joh, Luther Blissett, pteropus and 17 others like this.
  9. Invisible Woman

    Invisible Woman Senior Member (Voting Rights)

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    I feel when more sorry for the patients that will be persuaded. Especially, when the penny drops that they've been used to further efforts in trivializing the condition. Assuming they select patients with ME, of course
     
    Invisible Woman, Apr 24, 2018
    #9
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  10. TiredSam

    TiredSam Committee Member

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    The bag design, approved by the ethics committee:

    upload_2018-4-24_21-47-55.png
     
    TiredSam, Apr 24, 2018
    #10
    AndyPandy, Joh, Luther Blissett and 24 others like this.
  11. Barry

    Barry Senior Member (Voting Rights)

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    Yes I did immediately worry on that score myself. Are they a well intentioned but misled pawn?
     
    Barry, Apr 24, 2018
    #11
    Luther Blissett, adambeyoncelowe, Forbin and 2 others like this.
  12. Forbin

    Forbin Senior Member (Voting Rights)

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    Have the inherent risks of shopping bag research taught us nothing?

    [​IMG]
     
    Forbin, Apr 24, 2018
    #12
    Joh, Liv aka Mrs Sowester, Luther Blissett and 9 others like this.
  13. Gday!

    Gday! Established Member

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    Gday!, Apr 25, 2018
    #13
    Joh, Luther Blissett, pteropus and 6 others like this.
  14. Esther12

    Esther12 Senior Member (Voting Rights)

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    With good news, like New York State’s Revamped Website, I feel like I can really under-appreciate it until I see it in one of Tuller's blogs.
     
    Esther12, Apr 25, 2018
    #14
    Luther Blissett, Invisible Woman, Trish and 2 others like this.
  15. Andy

    Andy Committee Member

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    Above link is to http://wames.org.uk/cms-english/201...y-aka-hypochondria-common-in-people-with-cfs/
    Study paywalled at https://onlinelibrary.wiley.com/doi/abs/10.1111/papt.12118
     
    Andy, Apr 25, 2018
    #15
    Hutan, Luther Blissett, Invisible Woman and 4 others like this.
  16. Alvin

    Alvin Senior Member (Voting Rights)

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    Alvin, Apr 25, 2018
    #16
    Luther Blissett and Trish like this.
  17. FreeSarah

    FreeSarah Senior Member (Voting Rights)

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    That's weird. I have that exact same symbol tattooed on my arse
     
    FreeSarah, Apr 25, 2018
    #17
    Joh, Barry, Luther Blissett and 5 others like this.
  18. chrisb

    chrisb Senior Member (Voting Rights)

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    I do wish someone would do a survey to ascertain what proportion of research psychologists report results in a coherent and meaningful manner.

    To the ignorant it appears that 50 of the 45 people studied had above normal levels of anxiety.
     
    chrisb, Apr 25, 2018
    #18
    Hutan, Luther Blissett, Barry and 12 others like this.
  19. Trish

    Trish Moderator Staff Member

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    If I'm reading that correctly, those figures are for the same test and same set of data and no patient can belong to both groups, since you can't be at the same time in the clinical and subclinical ranges, unless these overlap??? So they appear to have performed the miracle of spontaneous generation and created 5 patients out of thin air.
     
    Trish, Apr 25, 2018
    #19
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  20. Alvin

    Alvin Senior Member (Voting Rights)

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    Not thin air, they are probably Schrödinger's patients :rofl:
     
    Alvin, Apr 25, 2018
    #20
    Hutan, Joh, adambeyoncelowe and 9 others like this.
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