Discussion in 'General ME/CFS News' started by Cheshire, Mar 5, 2018.
- So I plan to conduct another crowdfunding campaign to support the project for another year—from July 1st, 2018, to June 30th, 2019.
Fantastic news, thank you @dave30th. I'm really pleased you plan to tackle MUS too. It's a great threat hanging over us.
Save up your pennies for April, folks.
Yay! Totes emosh, I'm tearing up here @dave30th - Magic news, thank you!
Will start saving my pennies immediately.
I can't believe it was that long ago, but also, it feels like a life-time.
When it came out I was aware of how connected Wessely was, and that many in the UK Establishment were committed to defending PACE - but I've still been shocked at the lengths and tactics that they've been willing to stoop to.
Shouldn't QMUL be paying for Tuller's work by now?! If it wasn't for him they'd never have realised how badly their systems had failed.
Very glad you will be staying around @dave30th.
October 2015 was the beginning of my real education about the politics around ME. And still it continues.......
Absolutely brilliant news, thanks so much.
Sweet dreams EC, Bristol Uni, QMUL, Lancet, PACE team, Wessely, Cochrane, BMJ etc!
Excellent news @dave30th. Your work is obviously of huge value in its own right, but I also believe it is contributing indirectly to some of the other important advocacy endeavours - informing, encouraging and enabling them. There is a real groundswell of change getting underway now, and I suspect it might not be happening were it not for you. I appreciate of course that you are strongly supported by other great advocates as well, but the way you pull it all together and present it is superb, and highly effective. This of course is a crucial time where we must keep piling on the pressure, which is why it is so great you are continuing your efforts. Sincere thanks.
In theory but they don't want to know that they have failed, they want to pretend they are right and were all along, admitting failure is not an option to them
They have to protect their reputation and their people at any cost because their reputation and more importantly power/cognitive dissonance is at stake.
Thanks for your efforts over the years @dave30th.
Earlier in 2015 I was coming up for my biannual review of my disability pension provided through my income protection insurance. I knew the specialist I needed a report from was keen on me trying CBT and GET due to the PACE trial and I felt strongly that they weren't the answer for me. But at that time it was hard to find a document that outlined the problems and I didn't have a clear enough picture in my own mind to have any chance of arguing my point in the grips of the brain fog that engulfs me in such situations. So I decided I needed to write my own analysis of PACE that would both clarify things on my mind and provide something I could give to the specialist and my GP. My GP liked it, it seemed to get the specialist to understand my viewpoint somewhat (but he wasn't totally convinced) and it certainly clarified things for me. Then a few months later your first Trial by Error post appeared and you said it all so much better and more powerfully than I could. Thanks so much for the changes you have wrought and thanks for planning to continue.
Yep, I'm good to go again.
So good to hear. You have kept hammering away and we are seeing the results.Esther has vacated her place on CMRC. I'm delighted that you are getting results and coming back into the fray for another bout.Huge thanks to you for your tenacity and wishing you satisfaction and success in all your endeavours for our community. You make a huge difference.
Thank you @dave30th
Well worth raiding my piggy bank for another year's excellent work!
Best investment I ever made.
Relieved. You're worth every penny, David.
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