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David Tuller: Trial By Error: And Cochrane Makes Another Move…

Discussion in 'General ME/CFS news' started by Eagles, Dec 10, 2018.

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  1. Eagles

    Eagles Senior Member (Voting Rights)

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    176
    Trial By Error: And Cochrane Makes Another Move…

    10 December 2018

    By David Tuller, DrPH

    http://www.virology.ws/2018/12/10/trial-by-error-and-cochrane-makes-another-move/

    Yet another interesting development has taken place at Cochrane—and this new development again suggests that things there might be moving in the right direction. On Friday, the organization
    withdrew a protocol for what is called an “individual patient data” review of exercise therapy for the illness it has referred to as chronic fatigue syndrome...
     
    Eagles, Dec 10, 2018
    #1
    TiredSam, andypants, Inara and 34 others like this.
  2. NelliePledge

    NelliePledge Moderator Staff Member

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    UK West Midlands
    If Cochrane is looking to get the exercise review withdrawal done under the radar this week would be a perfect time. With the current political chaos in the UK nobody is going to bat an eyelid about this. I’m keeping my fingers crossed for this Friday teatime.
     
    NelliePledge, Dec 12, 2018
    #2
    EzzieD, Unable, janice and 6 others like this.
  3. Seven

    Seven Senior Member (Voting Rights)

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    I have the feeling if this were to happen, we need to let everybody know :)balloons::balloons::balloons:doctors specially) and we will be so happy that we would take over tweeter and half of social media@!! we are a lot of plp.
     
    Seven, Dec 12, 2018
    #3
    MEMarge and Trish like this.
  4. NelliePledge

    NelliePledge Moderator Staff Member

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    Those who are interested in ME advocacy in uk are say 15,000 based on those who signed the MEAssociation petition last year. Brexit is smothering news and social media. 15,000 people are unlikely to be picked up on the news radar.
     
    NelliePledge, Dec 12, 2018
    #4
    janice, MEMarge and Trish like this.
  5. Seven

    Seven Senior Member (Voting Rights)

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    we here in USA we will make noise for you all guys :) We don't have much going on.:thumbup:
     
    Seven, Dec 12, 2018
    #5
    rvallee, Inara, Amw66 and 5 others like this.
  6. NelliePledge

    NelliePledge Moderator Staff Member

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    13,277
    Location:
    UK West Midlands
    Personally I’m not bothered if it doesn’t get coverage if going under the radar means it is actually withdrawn that’s ok. Medics here won’t do anything differently until the NICE guidelines change.
     
    NelliePledge, Dec 12, 2018
    #6
    EzzieD, Invisible Woman, Unable and 4 others like this.

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