1. Guest, 'News In Brief' from w/c 3rd Dec can be read here.
    Dismiss Notice

Correspondence from the DWP for 2004

Discussion in 'General ME/CFS News' started by JohnTheJack, Mar 4, 2018.

  1. JohnTheJack

    JohnTheJack Senior Member (Voting Rights)

    Messages:
    601
    Likes Received:
    4,441

    Attached Files:

    Flying Dutchman, Jan, Moosie and 11 others like this.
  2. JohnTheJack

    JohnTheJack Senior Member (Voting Rights)

    Messages:
    601
    Likes Received:
    4,441
     

    Attached Files:

  3. JohnTheJack

    JohnTheJack Senior Member (Voting Rights)

    Messages:
    601
    Likes Received:
    4,441
     

    Attached Files:

  4. Lucibee

    Lucibee Senior Member (Voting Rights)

    Messages:
    634
    Likes Received:
    6,411
    Location:
    Mid-Wales
    Is Carol Monaghan MP aware of these?
     
    Last edited: Mar 6, 2018
  5. Seven

    Seven Senior Member (Voting Rights)

    Messages:
    135
    Likes Received:
    508
    Is hard to read from cel but who are this plp copied ( why the government emails?!)
    I don’t think even when they do a grant all that involvement is like normal in UK???
    2) can somebody highlight the points pls?
     
  6. JohnTheJack

    JohnTheJack Senior Member (Voting Rights)

    Messages:
    601
    Likes Received:
    4,441
    Not that I know of.
     
  7. seanpaul

    seanpaul New Member

    Messages:
    2
    Likes Received:
    15
    how was this obtained? - FOI? is there any more

    there is some hot stuff in here real revelations

    can someone do a FOI to ask DWP for all communications between DWP, Mansel and White - that would be nice to see

    then to same FOI for QMUL for same comms between WHite and DWP and Mansel????

    has this been done ???
     
    Barry and Esther12 like this.
  8. Lucibee

    Lucibee Senior Member (Voting Rights)

    Messages:
    634
    Likes Received:
    6,411
    Location:
    Mid-Wales
    Do these still need abstracting?
     
    Esther12 likes this.
  9. ukxmrv

    ukxmrv Senior Member (Voting Rights)

    Messages:
    356
    Likes Received:
    2,245
    It's interesting that Mansal Anyward knew Chris Clarke in 2004. I'm wondering when was the first involvement of AFME in PACE and was it all through CC?
     
    Esther12 and Invisible Woman like this.
  10. Esther12

    Esther12 Senior Member (Voting Rights)

    Messages:
    2,358
    Likes Received:
    19,723
    Aylward seemed close to AfME in 2003 too: https://www.s4me.info/threads/correspondence-from-the-dwp-for-2003.2682/#post-49749

    I've been planning to go through these when I have a chance, but happy for others to go for it first!
     
    Invisible Woman, ukxmrv and Lucibee like this.
  11. Lucibee

    Lucibee Senior Member (Voting Rights)

    Messages:
    634
    Likes Received:
    6,411
    Location:
    Mid-Wales
  12. Lucibee

    Lucibee Senior Member (Voting Rights)

    Messages:
    634
    Likes Received:
    6,411
    Location:
    Mid-Wales
    Summary of Correspondence to DWP about PACE trial in 2004

    1. 13 Feb 2004 – Anne Faulkner (CFS Research Foundation) to Mansel Aylward
    AF updates MA about CFSRF research progress.

    2. 3 Mar 2004 – Peter White to TSG
    Subject: PACE TSC first meeting
    Making arrangements for first TSC meeting.

    3. 18 Mar 2004 – Tracy Straker (Mansel Aylward’s secretary) to Peter White
    Re: PACE TSC first meeting
    Confirming date and arrangements for first TSC meeting.

    4. 18 Mar 2004 – Mansel Aylward to Ben S (WACG)
    Includes emails from MRC about PACE trial progress and funding contributions.

    5. 25 Mar 2004 – Mansel Aylward to Ben S (WACG)
    Subject: The PACE Trial
    Asking for clarification of funding email exchange.

    6. 25 Mar 2004 – Mansel Aylward to Rose Lynch (MRC)
    Subject: The PACE Trial chkd
    MA just returned from annual leave. Asks for confirmation that funding invoice paid to QMUL. Queries timeline of instalments.

    7. 12 May 2004 – Moira Henderson (CMG) to Mansel Aylward & Peter White
    Subject: FW: Article of interest on MRC research into CFS/ME CHKD
    Includes Independent article by Jerome Burne

    8. 17 May 2004 – Peter White to TSG
    Subject: Approved draft minutes of PACE TSC #1
    (minutes not included)

    9. 28 May 2004 – Gordon Waddell to Mansel Aylward and others
    Subject: Re: An Interesting systematic review
    GW agrees with most of MA’s points. Raises “more general question of how much (in)capacity for work is a matter of health (or health care)? Might this also link to the other questions we have discussed about ‘motivation’ to work/personal responsibility and choice etc that may account for some (a lot?) of the missing variance?”
    Includes message of 27 May 2004 from MA to GW and others – Important points listed but review not included.
    Includes message of 25 May 2004 from PW to MA – subject: An interesting systematic review (not included)

    10. 22 July 2004 – Mansel Aylward to Peter White
    Subject: Conflicts of Interest of Independent Members of the PACE Trial Steering Committee
    MA confirms he has no CoIs.
    Includes letter of 18 June from PW to TSC members.

    11. 28 July 2004 – Peter White to Robin Buckle
    Subject: Permission to use logos on important PACE documents
    PW asks for permission to put PACE funders’ logos on important PACE docs, such as the protocol.
    Handwritten reply from MA that, “The DWP is most content to be associated with the PACE initiative [?].”

    12. 29 July 2004 – CSO SEHD to Mansel Aylward & DH
    Subject: Permission to use logos on important PACE documents
    Scottish Health CSO says, “keen to publicise our support for this trial to show that we are in favour of evidence-based approaches to managing CFS/ME.” etc.
    Includes email 11.

    13. 29 July 2004 – Ron Kirby (DH) to Mansel Aylward & CSO SEHD
    Subject: Permission to use logos on important PACE documents
    Advises that DH logo should not be used in case it implied that doc is DH publication when it is not, as “publication would probably benefit if its independence was not in doubt.”
    Includes start of email 11.

    14. 14 Sept 2004 – Rose Lynch (MRC) to Mansel Aylward
    Subject: RE: PACE Trial
    RL informs MA that PACE trial started on 14 June, and outlines funding due.
    Includes message of 30 Apr 2004 MA to RL.

    15. 15 Sept 2004 – Rhiannon Powell to Mansel Aylward
    Subject: PACE Programme (Chkd)
    RP thanking MA for making Thursday’s meeting such a huge success.
    Following up on a few points, asking for contact details for someone involved in raising awareness for the issues for people with chronic fatigue, and for email versions of the slides presented.
    MA has made notes for reply.

    16. 28 Sept 2004 – Mansel Aylward to T Powell
    Subject: CHKD RE: PACE Programme
    Contact details for Chris Clarke (Chief Exec of AfME) involved in raising awareness of issues for people with CFS, so that she can say that MA provided her with his name etc.

    17. 16 Nov 2004 – Mansel Aylward to CMG Finance Dept?
    Subject: Chkd PACE TRIAL (MRC – Peter D White). HDWD transfer of £40k
    Confirmation of £40k transferred by HDWD to CMG’s budget in payment of first annual tranche for PACE MRC Trial contribution to funding.
     
    Last edited: Mar 9, 2018
    inox, Inara, Flying Dutchman and 9 others like this.
  13. Trish

    Trish Moderator Staff Member

    Messages:
    8,660
    Likes Received:
    47,943
    Location:
    UK
    I don't have the energy to follow all this, but I just wanted to say thank you to all of you making such herculean efforts beavering away getting at the truth. Great job.
     
    Daisymay, Inara, JohnM and 8 others like this.
  14. Lucibee

    Lucibee Senior Member (Voting Rights)

    Messages:
    634
    Likes Received:
    6,411
    Location:
    Mid-Wales
    There's not much of anything in there - mostly just admin and procedural stuff (and a hefty pinch of arrogance). Unless someone has spotted something I haven't.

    [Update: I've put screenshots of the pdfs into a single Word file if that would be useful to anyone. If it would be useful to produce a transcript too, let me know.]
     
    Last edited: Mar 10, 2018
    Esther12 and JohnTheJack like this.
  15. JohnTheJack

    JohnTheJack Senior Member (Voting Rights)

    Messages:
    601
    Likes Received:
    4,441
    Yes, FOI. I'm doing my best to get all this correspondence, but they only release a little at a time. If they get lots of FOIs they can claim 'campaign' and 'vexatious' and stop completely.
     
    Daisymay, ukxmrv and Indigophoton like this.
  16. JohnTheJack

    JohnTheJack Senior Member (Voting Rights)

    Messages:
    601
    Likes Received:
    4,441
    Thanks for all this work, Lucy.
     
    JohnM likes this.
  17. Esther12

    Esther12 Senior Member (Voting Rights)

    Messages:
    2,358
    Likes Received:
    19,723
    I'd be interested in that. I've still not had a chance to go through these, but I would like to at some point. Thanks for all your notes.
     
    Lucibee likes this.
  18. Lucibee

    Lucibee Senior Member (Voting Rights)

    Messages:
    634
    Likes Received:
    6,411
    Location:
    Mid-Wales
    Message me your email address and I'll send it to you. I'm also doing the same with 2003, using your notes - I hope that's OK.
     
    Esther12 and Amw66 like this.
  19. Lucibee

    Lucibee Senior Member (Voting Rights)

    Messages:
    634
    Likes Received:
    6,411
    Location:
    Mid-Wales
    Easier if I just upload the file here:
     

    Attached Files:

  20. Flying Dutchman

    Flying Dutchman Established Member

    Messages:
    17
    Likes Received:
    98
    The 4th file (https://www.s4me.info/attachments/4671-14-09-2004-lynch-rose-to-ma-r-pdf.2049/) contains two emails. In the first (at the bottom of the page) Aylward writes to an MRC employee about how the MRC should invoice the DWP for payments relating to PACE.

    In that email, Aykward also refers to a payment of £8,000 to Peter White for a "separate project".**

    It appears the DWP was paying this to White for something unrelated to PACE.

    Does anyone know of White (or his research group) doing other work/research funded by DWP?

    Might this be a consultancy fee?
    Possibly an undisclosed conflict of interest?

    [** The sentence in question appears to have a typo ("quote" instead of "quite").]
     
    Daisymay, EzzieD, Trish and 5 others like this.

Share This Page