Community Symposium on the Molecular Basis of ME/CFS Sept 5 (Stanford/Ron Davis)

[Jaybee00]

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Community Symposium on the Molecular Basis of ME/CFS returns Sept 5 on zoom! 8am-1pm PST Attendance limited to 5,000. Registration required and can’t be shared. Registration link: https://stanford.zoom.us/webinar/register/WN_ytJs3XWjQ0q62N9fmXoajA See photo below:

(Tweet from Ron Davis)

 

[Sasha]

What kind of thing is this? Worth bears of little biological brain turning up, or would we occupy limited spaces better used by people not just munching popcorn?

 

[Jaybee00]

I think 5000 spaces is more than enough for everyone.

(Really hope that RD is not on Twitter/X for real)

 

[Jaybee00]

What kind of thing is this?

Usually they have a couple days of closed meetings for researchers and then an open public meeting.

 

[Sasha]

Usually they have a couple days of closed meetings for researchers and then an open public meeting.

Any idea what goes on in the open public meeting? Is it mostly presentations?

 

[Sasha]

Oh! Answered my own question, here's the schedule for the 2019 one.

 

[Jaybee00]

Description
The Stanford Genome Technology Center will be hosting a virtual "Patient Day" on Friday, September 5th from 8:00am-1:00pm (PT) Patients will have the opportunity to hear from speakers who will present their findings on ME/CFS, what they believe is the cause of the disease, and how they are working towards a solution. Join us on September 5th to learn more!

 

[Jaybee00]

I just registered….so there’s at most only 4,999 spots left….tick tock…

 

[ahimsa]

A text version of the webinar anouncement (line breaks added) for those who need it:

Community Symposium on the Molecular Basis of ME/CFS returns!

I am pleased to announce that this year’s 9th Annual Stanford Working Group Meeting on the Molecular Basis of ME/CFS will include a Community Symposium again, in which patients, caregivers, doctors, and any other interested parties are invited to attend.

The meeting will be held September 2 - 5, and the last day, September 5, will be open to the public. It will be held on zoom from 8 am to 1 pm PST, and you must register to be sent a link to gain entrance to the meeting. The link you are sent can only be used by the email you register with, and cannot be shared.

The capacity will be 5,000 attendees. I will be announcing the agenda soon.

I am excited to be able to do this again, and look forward to seeing you there!

 

[Jaybee00]

 

[Jaybee00]

Be curious to hear if https://en.wikipedia.org/wiki/Baldomero_Olivera has come up with any leads.

 

[ahimsa]

@Jaybee00 - thanks for posting the agenda!

An announcement of this symposium is now on the main page of the Stanford Genome Technology Center website:

Welcome to SGTC

med.stanford.edu

And the symposium agenda is also available there (as a PDF) for those who need a clearer version.

 

[Jaybee00]

Closed session agenda day 1

 

[Jaybee00]

Day 2

 

[Sasha]

The public event starts at 4pm tomorrow UK time, right?

 

[Kitty]

The public event starts at 4pm tomorrow UK time, right?

According to Google, yes. (I didn't even know what PST meant to be fair.)

 

[Jaybee00]

Day 3–there is an unfortunate speaker here, unfortunately.

 

[Jaybee00]

Fluge/Mella attended these meetings a couple of years ago, but have not attended recently. Wonder if there is any bad blood?

I know this isn’t an OMF event, but Fluge is still on the Scientific Advisory Board of OMF.

 

[Jaybee00]

Janet Dafoe

Anyone have message to these researchers? I will read it to them at the end. please make it positive. Thank you.

 

[OrganicChilli]

I know this isn’t an OMF event, but Fluge is still on the Scientific Advisory Board of OMF.

They should get all the money for their trial.