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Clinical Trial Participants’ Views of the Risks and Benefits of Data Sharing, Mello et al, 2018

Discussion in 'Health News and Research unrelated to ME/CFS' started by Indigophoton, Jun 8, 2018.

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  1. Indigophoton

    Indigophoton Senior Member (Voting Rights)

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    https://www.nejm.org/doi/full/10.1056/NEJMsa1713258#
     
    Invisible Woman, Hutan and Trish like this.
  2. Arnie Pye

    Arnie Pye Senior Member (Voting Rights)

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    4,238
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    I find it ironic that people worry about data confidentiality for research participants when, in the UK at least, we don't have real confidentiality of medical records at all. The government has given itself permission to ignore your wishes whenever it feels like it.

    https://medconfidential.org/for-patients/loopholes/
     

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