Clinical, radiological and immunological findings in ME/CFS, other pain conditions or fatigue; Bertilson

From the MED Study thread, info relevant to this study too:
mango said:
Background: At the Bragée ME-Center, where the PhD students work, evaluations are offered to sick patients with possible myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) referred from all of Sweden. ME/CFS affects about 1% of Americans and can be defined as debilitating fatigue and widespread pain for 6 months in the absence of systemic disease. Common associated disorders are fibromyalgia, irritable bowel syndrome (IBS) and chronic symptoms after head and neck trauma. The cause of ME/CFS is still not known. ME/CFS shall be managed primarily within primary care according to Stockholm County Council guidelines, through a thorough medical history, physical examination and laboratory tests. However, current processes are often not structured enough and ME/CFS can be psychologized to the disadvantage of patients.

Aim: The overall aim of the PhD project is to make a contribution to the development of improved management and diagnostic process in primary care for ME/CFS and its associated disorders, and the goal is to reduce patient suffering and health care costs. Other aims are to describe the occurrence of cervical nerve affection among patients who are investigated for ME/CFS; to examine the usability of a discomfort drawing as a diagnostic tool to identify instability/nerve affection; to examine to what extent characteristic radiological findings can be identified for ME/CFS and its associated disorders. Project benefits are that a pain analysis will be made more frequently and in a more structured way for these patients. Eventually this can get the right treatment as soon as possible to people with chronic and hard to treat conditions.

Methods: The project is a clinical study with research questions mainly related to the extent of occurrence of cervical nerve affection among patients referred for investigation at Bragée ME-Center. Study variables are those included in the clinic’s regular assessment, such as the area of symptoms and quality of life (measured with discomfort drawing and EQ5D respectively), and structural changes in the cervical spine (measured with MRI).

https://staff.ki.se/people/gabber
Click to expand...
 
I don’t know if the research is sound, but I do wonder why they are looking at tonsillectomy?

My ME started after my tonsillectomy.
Half year before that I had a horrible skiing accident where I went full speed, accidently turned around, went full speed backwards and fell backwards on my neck. In my case I wouldn’t be suprised if it was connected.

I was a skiing instructor and I also fell of my horse so many times...
 
They have started recruiting participants now, letters have been sent to 280 of their ME patients, according to this Facebook post by Björn Bragée.



ETA: For those of you who are unable to read the comments. One of Bragée's comments says that this particular study is only open to their current patients, but soon they will invite more people to "a very interesting study for everyone who is interested and believe they have this diagnosis"...
 
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