Channel 5 News interview tonight with family of the late Merryn Crofts (young PWME)

ME Association Facebook: Channel 5 news this evening



Merryn's family were this morning interviewed by Channel 5 news following the overwhelming response to last weekend's news stories.

The interview should be broadcast this evening at 5pm and again at 6.30pm. And Dr Shepherd just informed me that he was also interviewed by Channel 5 briefly on the phone.

 

Thanks for posting, @Eagles, good to know about this.

What do you think about maybe changing the title of the thread to 'Channel 5 News interview tonight with family of the late Merryn Crofts (young PWME)' or something?

 

Thanks. I've just done as you suggest.

 

see also this thread
https://www.s4me.info/posts/59442/

 

https://www.youtube.com/watch?v=AOWVA7PFq4k

 

Sadly when introduced by the Newsreader in the 5.30pm News, said Merryn had been severely ill for 6 days, not years. Sadly, think was a misread of the script - or even thought must be a typo.

Still, was important to have such a strong and personal piece on air, though wish this had never happened.

 

Unfortunately this link does not work in the Republic of Ireland. I'm guessing it only works in the UK.

 

I can't view it but I am sure it was very good and done sensitively. Such a heartbreak.

 

Too bad video is not available to watch everywhere... Maybe someone could convert it and repost without this limitation?

 

https://twitter.com/user/status/981895534259638273

 

This was a very well done news item in the UK from 2006; but then we got the NICE guidelines and then PACE.
So sad that history is still repeating itself:

https://www.youtube.com/watch?v=NNWWjRx8tJM

for those on twitter it was recently tweeted
https://twitter.com/user/status/981962109327167488


eta: this is the twitter account of Stacey Poole who is now a regular presenter on Meridian News https://twitter.com/staceypooleitv?lang=en . She did such a good job before; why did she stop?

 

Even if you don't agree with a lot of Dr Byron Hydes theories, this article is another sad example

"
Amy Brown was now home again and it was only then the parents saw the incorrect history and
physical the consultants had done in the two hospital centres. They were understandably upset. So, on the 25th of April 2014, approximately four months after Amy first fell ill, Amy’s dad called the
hospital doctor regarding Amy’s report to complain of the poor treatment and incorrect history. Amy’s father had reason to be angry, but it appeared the doctor then became even angrier. He wasn't going to take any of this guff. Exactly five days later after the father’s phone call, the doctor retaliated by issuing a Section 47 on the 30th of April 2014. Retaliated is a harsh word, but I believe there is no other suitable word to describe the doctor’s reaction."

"
The social welfare officer came to the family’s house, examined Amy, spoke to her and her parents,
and must have decided it was the doctors who were mad and not Amy. So social services did the right thing and left Amy in the loving care of her parents,.."

"
Unfortunately, inappropriate sectioning of a child has another very dramatic effect on all such families
in England. The families become rightfully frightened of their children’s welfare and tend to avoid all
physicians. I assume the doctors are happy since they don't hear from this family any more and they
have now totally forgotten the patient."

"
Amy’s illness might be viewed as a typical and dangerous case of child neglect, not by the parents, but by the British medical community that was supposed to serve her best interests and the best interests of all children and adults in the United Kingdom."